Treatment Number 1 complete

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  • August 23, 2012 at 2:42 am #63804
    laurkcp
    Spectator

    Thanks Marion and Lainy. This is sure a roller coaster ride.

    August 21, 2012 at 11:38 pm #63803
    marions
    Moderator

    Laurkcp….you are vigilant about your Mom’s care. I would make sure to mention this episode to the physician and nurses before the next treatment. At times (we have seen) for the dosage to be reduced, as chemotherapy is accumulative. Good going. Fingers crossed for an easier time and for your Mom’s bilirubin to continue to drop.
    Hugs,
    Marion

    August 21, 2012 at 8:08 pm #63802
    lainy
    Spectator

    Dear Laurkcp, sorry mom had such a rough time but everything was set to help in every way. I am sending, through cyber space, a pair of pink boxing gloves, well ok, with some glitter on them, and hope that Mom really boxes that CC! Also hope the next round has no side effects.

    August 21, 2012 at 8:03 pm #7255
    laurkcp
    Spectator

    After receiving a mediport last Monday, Mom received chemo later that evening and was sent home with a 48 hour infusion pump of F5U. I told her she looked like a suicide bomber as I am convinced that bottle looks like a bomb! She was so tired and the port was painful those first 48 hours. WHen they removed “the bomb”, she was so tired and so pale that she slept in the chemo suite for 2 hours before bringing her home. I knew the next couple of days would be bad.

    She was a bit nauseous which zofran tok care of. Her mouth was dry a lot which biotin rinse or spray did the trick. As the weekend approached I thought she would start to feel better, but she was still so fatigued and foggy. I brought her to the urgent care at Fox Chase and the onc and I were convinced that her billirubin was on the rise and that her blood counts were low and that she would need an external drain and a transfusion. Much to all of our surprise, her billirubin dropped from 3.5 to 2.8 and all her counts were normal! We literally cried tears of joy. The onc thinks that since the liver enzymes are high, it may take the chemo more time to metabolize. They gave her some electrolytes, and we went on our way. I see a big improvement in her morale today.

    I truly hope that the drop in bilirubin is because the tumor is shrinking. Hopefully, it will drop further after round 2…

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