Update on my mother
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- This topic has 25 replies, 9 voices, and was last updated 12 years, 2 months ago by gavin.
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October 6, 2012 at 7:04 pm #64449gavinModerator
Dear Julia,
I am so very sorry indeed to hear of the passing of your dear mother. Please accept my sincere condolences and know that my thoughts are with you and your family right now. We are all here for you.
Hugs,
Gavin
October 6, 2012 at 3:22 pm #64448lainySpectatorDear Julia, I am so very sorry about your Mother, she was a very courageous woman and you willl see that her love is all around you all the time. My most sincere thoughts and loving prayers go out to you and your family.
God looked around his garden and he found an empty place,
He then looked down upon this earth and saw Mom’s tired face.
He put his arms around her and lifted her to rest.
God’s Garden must be beautiful, He always takes the best.
He knew that she was suffering, He knew she was in pain.
He knew that she would never, get well on earth again.
He saw the road was getting rough and the hills were hard to climb,
So he closed her weary eyelids and whispered “PEACE BE THINE”.
It broke your hearts to lose her, but she didn’t go alone,
For parts of you went with her the day God called her home.October 6, 2012 at 2:09 pm #64447mymommylifeSpectatorSo sorry about your mother’s passing. May the passage of time give you peace with your memories of her.
October 6, 2012 at 1:42 pm #64446jujubearMemberIt saddens me so much to write this. My mother has passed to everlasting life yesterday 10/05/2012 at 2:05pm.
My family was beside her until her last breath. Right now, it all feels like a dream, and everything is moving so quickly.
I thank everyone for their support, and for all the advice the board members has shared. Thank you.
October 5, 2012 at 4:37 pm #64445marionsModeratorJujubear…..My heart is with you. Julia, your Mom can hear you; she feels your gentle touch, is aware of your presence and the surrounding love.
My love and thoughts are with you in this so very precious time.
Hugs and kisses,
MarionOctober 5, 2012 at 1:58 pm #64444lainySpectatorDear Julia, I just sent you an email.
October 5, 2012 at 1:28 pm #64443jujubearMemberPlease help me.
Yesterday my mom would not stop sleeping. She fell into a deep sleep, and when the doctors or nurses tried to wake her to see how she is doing, she would wake up then fall back to sleep.
The doctors gave her 2 diuretics and she did not release any fluid by urine. They took her bloodwork and saw that her liver counts were high. They said she has an infection in her liver and that the antibiotics she is using is the strongest . Her blood pressure started off in the morning at 95/68 then fell to 77/48 by midnight. This morning it is at 70/?..This happened very quickly, she was fine the other day before and it’s very sudden. When I do get a chance to speak to her she says that she is ok and that she is fighting.
October 3, 2012 at 11:06 pm #64442lainySpectatorJujubear, I am sorry to hear all the not so good stuff but at least it is all out in the open now. It will be easier to proceed in any way that is chosen as the decisions are now made and you have a direction. I think the team meeting was a great thing to do. I sure hope your Mom starts feeling better like right now! We are all here for you. Be strong!
October 3, 2012 at 8:53 pm #64441jujubearMemberHi, I wanted to first thank all of you who have taken your time to give me such wonderful advice. And now, I will update you all on what happened.
We had a meeting with my mother’s medical doctor, the onc who was working with my mother’s onc, the pallative care team, and 2 social workers. The meeting was to make sure that my mother knew what was going on with her, and how she was feeling. They wanted to make sure that she understood what was she going through. And any questions we had, they answered it to us.
The last CT scan that mom had was in August 2012. The Onc had told us that the first round of chemo ( gemzar) had worked, then seemed to stop working. He mentioned that he saw another growth near her kidney area, and that is when he recommended the 2 options of either gemzar with cisplan, or the 5FU. His suggestion was 5FU because of my mom’s age & condition.Back to the meeting: we were informed that not only did her cancer spread to her kidney area, but also her ovaries and stomach lining. Because it had spread out, the fluid is constantly forming. They are also giving her 2 different antibiotics for her infection. Her blood pressure is still low, and they do not want to TAP her because her pressure will get lower.
When asked by the medical team, what she will like to do, she says that she wants to get the fluid out first, and see if she can get chemo. The doctors have been giving her LASIX through the IV, and slowly the fluid is coming out. For my mom, she told them that quality of life cannot be attained by just being in bed and getting her symptoms taken cared of. The pain medicine that she is given makes her sleepy, but doesn’t keep her asleep. She wakes up abruptly, gasping for air. The nurses are constantly checking her lungs, and they say it is fine. When asked, my mother says that she feels pain in her chest. The doctors have said that due to her infection and low blood pressure, her heart is beating very rapidly, and is overworking….
I see my mother in pain, but I do know why she chooses to keep fighting. It’s because she doesn’t want to have any regrets. At the end of the day, she wants to say ” at least I tried…”As of hospice: the social workers will have to check and see if our insurance covers hospice care. My mother wants to be at home, and they will try to set it up with hospice to take care of her at home.
My family now is starting to prepare other things as of now. Things that I wish my parents would of taken cared of before anyone was sick. But, it must be done. My parents never had a proxy, so that was done. They both never discussed how they would like to be buried, or if they wanted to be cremated. That is being taken cared of now for my mom. And now, my dad is letting us know of his wishes for himself.
For my mother, she wants to take things one step at a time. Get the fluid out, and see if she can get treatment. If not, then she knows what the next step is. The doctors let us know that this chemo treatment is the last option for her.
I will ask the doctors about the option of taking chemo in pill form! If she is eligible for that, it would be fantastic for her! Thank you for advice, PCL1029! I will keep you in my prayers!
October 2, 2012 at 3:44 am #64440lisacraineSpectatorHi,
I will be praying for your family tomorrow.
LisaOctober 2, 2012 at 3:03 am #64439marionsModeratorJujubear…..I will be thinking of you tomorrow. The upcoming meeting with the physicians will clarify many important things:
1. is a Paracentesis possible (removal of abdominal cavity fluid?)
2. what is causing the ascities (fluid accumulation?)
3. Is she able to tolerate the suggested treatments (chemo?)
4. Is she responding to the antibiotics?
I believe that these points, once addressed, will allow for a clearer picture.
Based on the outcome of the meeting, and your supportive presence, your Mom will be able to make a decision. My fingers are crossed and I wish for the best of luck.
Hugs,
MarionOctober 1, 2012 at 10:09 pm #64438pcl1029MemberHi,
I am a patient of this cancer and the final decision of continuing to treat or not to be treated should be from you MOM only.
Then said, if I may , based on the messages that you had given to us; if your mom wants to be treated and continues the treatment; besides taking care the ascites and hypotension and balancing the electrolytes; Oral 5 FU ( Xeloda ) which mentioned in one of your messages(dated 9/12) may be the choice for your mom if your oncologist who suggested it before agrees, It is by mouth, ease to use and side effects are minimum.It can be taken at home and fullfill your mom’s fighting spirit. I am still taking them twice a day for 11 months now.
“Quality of life”, if she chooses that over the “quantity of life” ; use Xeloda in palliative care is also acceptable too; you can stop the Xeloda anytime .There are a lot of improvement in the Hospice care industry . they provide a lot of comfort and ease the suffering for both the patient and the caregiver. Ask the discharge planner nurses for choosing the best one for your mom if this is her wish.
God bless.October 1, 2012 at 10:05 pm #64437jujubearMemberThanks Lainey for that advice!
We have a meeting at 2pm tomorrow. Will keep you all updated.October 1, 2012 at 9:54 pm #64436lainySpectatorDear Jujubear, I am sorry to hear about your Mom being in the Hospital again. I know it is so hard to see her suffer like this. I guess the big decision will be made with the Doctor tomorrow. Just a suggestion but if Mom still talks Chemo, you might want to ask, in front of her, how much time the ONC feels it will buy her. That could help all of you decide which way to go. When Teddy heard that the chemo would only buy him a month he opted for quality over quantity. We await your post tomorrow. We are all with you!
October 1, 2012 at 9:27 pm #64435jujubearMemberToday is day 4 of being in the hospital. My mother was admitted last Friday. We decided to bring her in because her fluid was getting worse in her belly and legs. Also, she was getting fevers every day. After spending the night in ER, mom finally got a bed upstairs. The doctors have been in and out throughout the days she was herein and she is just getting pain meds with 2 different antibiotics because they say she has an infection. They have not done any fluid removal because since Friday, her blood pressure is low. It was at 94/59, and today it is up at 103/68. Being that she is pretty much bed ridden, her BP will not go up much.
Today I witnessed my mother’s body changes. Her thighs are filled with fluid and I also saw her sides have pockets of water.
Being that she is uncomfortable many doctor’s have suggested palliative care. My mother has always been a fighter. This is her third cancer, which included: pancreatic cancer in 1996 and breast cancer in 2006 with a mastectomy. She wants to get the fluid out and continue with her chemotherapy.
Tomorrow the doctor requested to have a meeting with her and the family to talk about ” what is next” for my mom. She mentioned briefly about hospice, but said she will talk more about it tomorrow. They are giving us 2 options: 1. Treat cancer aggressively 2. Treat her symptoms and take care of her pain without chemotherapyThat’s a very hard decision… I know my mom wants to fight but I get a feeling the doctors are pushing for her to stop.
They just put in lasix by IV and also restricted by 1 liter of fluid for today. -
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