Cholangiocarcinoma Awareness

Discussion Board Forums General Discussion Cholangiocarcinoma Awareness

Viewing 12 posts - 1 through 12 (of 12 total)
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  • #65809
    lisacraine
    Spectator

    We will not have raised enough money in our fund to grant for research for probably another year or two. The criteria for our fund clearly states that the money goes to cc research only. We will consult with the experts from this board, several specialists and the board of directors.

    #65808
    lainy
    Spectator

    Christerry, what an absolutely fabulous idea!!! By the way we also have FREE greeting cards on this site to help spread the word of CC. If you just go up to Get Involved at the top, then click on send an E Card there they are and very nice! My point, long way around as usual is, who ever one is sending a donation for can tell them in one of our cards. PERFECT!

    #65807
    cristerry
    Spectator

    Thank you sooo much for sharing this video. I was thinking today that instead of getting presents for the holiday season we will be asking our kids and other familynmembers to donate to cc fund.

    #65806

    It was wonderful seeing your video and your efforts to raise funds for the purple ribbon wearers in addition to pink! My doctor said that all the intestinal cancers outnumber Breast cancer but intestinal ones are compartmentalised do that we have pancreatic and bile duct and esophageal so that there isn’t a strong number yet for research that would directly deal with our small numbers. I keep hoping to find out a direct place funds will go for research. Where will money make an impact? The Akron fund doesn’t do the direct research. Who do they link with for this? Hoping to find out! Maybe Marian or someone else knows where money can help directly with research. Thanks!

    #65805
    gavin
    Moderator

    Thank you for this Lisa, thank you very much indeed!

    Hugs,

    Gavin

    #65804
    marions
    Moderator

    Lisa….Kudos to you – this is fantastic.
    Hugs,
    Marion

    #65803
    darla
    Spectator

    Awesome video and an awesome family. You are an inspiration to all of us.

    #65802
    Randi
    Spectator

    Wonderful video and fabulous thing to do!

    #65801
    lainy
    Spectator

    Pam, this is so exciting and wonderful! Wish I could join you! Have fun girls!

    #65800
    pamela
    Spectator

    Aren’t they just the best. Lauren and I feel so blessed to have Lisa in our lives. We love you so much, dear friend. We just had lunch with her again on Monday. We are all excited as we will be meeting our very own Kris for lunch this Saturday!! Without this site, we probably would never have met. So, thank you so much CC Foundation!

    Love, -Pam

    #65799
    lainy
    Spectator

    Well, Lisa and David, what can I say? You are an amazingly awesome couple and every day IS a gift, true, but you are a gift to all of us! Thank you so very much, we all just love you so much!

    #7507
    lisacraine
    Spectator

    Hi Everyone,
    David and I started a fund through The Akron Community Foundation to raise research money for our disease. The organization featured us in their publication and also made a video of our story. The publication is mailed out to thousands. Here is the link to the video which will be on their website soon.

    http://Www.akronist.com/Craine

    We will continue to raise money and spread the word about cc.

    Lisa

Viewing 12 posts - 1 through 12 (of 12 total)
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