New to this group – stage III/IVa ICC
- This topic has 62 replies, 15 voices, and was last updated 9 years ago by
.
-
Posts
-
Elaine, who is to say anything is short lived! Nobody knows and all I know is some have to be winners, life just seems to work that way. Best of luck and remember that life is for the living!
I have CT and MRI scans today and will repeat in January and March. For the next year after that, scans will be done every three months. Hopefully none of these will show recurrence and we will just be able to continue monitoring. I know this joy might be short lived, but it’s pretty sweet for now!
Dear Elaine-
Congratulations!!!! We always love to hear great news. I am so happy for you.
Best wishes- we look forward to many positive reports-
Catherine
Dear Elaine-
Congratulations!!!! We always love to hear great news. I am so happy for you.
Best wishes- we look forward to many positive reports-
Catherine
OH, Elaine, AWESOME news! YIPPEE! Is your ONC suggesting any kind of plan even though he feels you are in remission? Time to be realistically optimistic no reason not to be! I am so very happy for your and love going to sleep after ready such positive news! congratulations!
Hi all. It’s been a long time since my last post. I did one cycle of 5FU after surgery, but it was toxic so we discontinued treatment. I had slight thickening of the peritoneum, so my onc ordered a PET scan for 10/29. I got the results on 11/4 … everything is normal and I am doing great. My labs were mostly normal too, even the tumor markers. Hemoglobin and platelets are still recovering but looking better. Best news ever came in the form of two simple words: complete remission! My onc said we need to remain careful but that everything looks great. Here’s hoping for this to last a long time!
ElaineElaine….walking and moving is important especially for the 1/2 hour post meal ingestion. At times it helps to stand while eating. Also, some foods are more difficult to digest than others. As a whole though, I believe that most biliary surgeries change the digestive process. Burping, excessive gas and bloating are not an uncommon; increased sensitivity to foods high in fats top the list. With time, dear Elaine, things you will know what works best for you. So happy to know that overall you feel very good.
Hugs,
MarionThanks Marion. I will check with the doc on Thursday at my next follow up. The PA just recommended I keep moving/walking to keep things moving in my gut but I am hoping there is a simple way to reduce the bloating as I continue healing. Overall though, I am feeling pretty good, so I am happy about that.
Elaineesamolytz….. Some physicians automatically prescribe Creatin post resection. Otherwise you may want to purchase over the counter. Gas and digestion (unfortunately) can be annoying, but with time things may just settle in.
Hugs,
MarionAny advice in dealing with gas pain and bloating post resection? I look pregnant! It’s very uncomfortable and seems to just be gurgling around without, um, an outlet. My doctor’s PA says to just keep moving. I am having bowel movements but not quite back to normal. Any advice would be appreciated.
Incredible news, esamolytz. You had surgery,recovering well and the final staging came in as II.
Congratulations, your future outlook is excellent.
Hugs,
MarionSo wonderful to hear about two successful surgeries!!!! I hope chemo side effects are minimal for both of you and looking forward to many positive milestones in the future.
Best wishes,
CatherineI neglected to mention that my surgeon now says my disease was stage ii because nodes he thought would be diseased came back clear!
Congratulations on your good surgery! I had my surgery at the end of March and am about to start post-surgery chemo. My tumor also did not respond to cisplatin and gemcitibine initially. My oncologist has chosen oxaliplatin and xeloda for my post-surgical regimen. Give me a couple of weeks, and I’ll tell you how it’s going!
Kathy
- The forum ‘Introductions!’ is closed to new topics and replies.