Update from NIH trial

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  • July 6, 2013 at 10:12 pm #72627
    regina
    Member

    Hi Melinda~

    I’m new to this. I’m wondering what treatment you are on.

    Best of luck,
    Regina

    June 1, 2013 at 5:54 am #72626
    gavin
    Moderator

    Hi Melinda,

    Thanks for letting us know how things are going and this is excellent news! I am well chuffed for you and hope for further good news when you get your next tests in August. Will definitely be keeping my fingers crossed for you and please let us know how that goes as well.

    Hugs,

    Gavin

    June 1, 2013 at 5:01 am #72625
    lisacraine
    Spectator

    So happy for you! Praying for continued healing.
    Hugs
    Lisa

    June 1, 2013 at 2:02 am #72624
    kris00j
    Spectator

    I am so happy to read your news!! Yay for you!! And hopefully some cheers for some more cc patients soon!

    May 31, 2013 at 10:40 pm #72623
    Randi
    Spectator

    What great news Melinda!! Congrats. You must feel so relieved and elated. I am glad you are able to enjoy life and treatment is holding the CC at bay.

    You are a miracle!

    Hugs,
    -Randi-

    May 31, 2013 at 10:11 pm #8442
    mbachini
    Moderator

    Hi all,

    I just returned from NIH this week. My scans showed minimal growth, like in 1-2 mm in only a couple of tumors in my lungs. Considering I have several tumors in both lungs and I think 4-6 in my liver…that have not grown, I am still happy with this news. We are just watching for now, I go back in the middle of August for next checkup. They have a formula for everything and won’t consider it progression of disease until a certain percentage of growth. At that time I could possibly repeat the treatment, depending on the consensus of the doctors, or look for a different trial.

    I am still happy with the trial results for me, I only wish that it would work for someone else as well. There is still so much of the unknown. I know for me, not having to do chemo, gave me great quality of life this past year and amazing time with my family. I still don’t know what the future holds but I remain optimistic and hold on to my faith. Always thinking of you all, my fellow cc fighters….God Bless…..Melinda

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