Malabsorption problems after Whipple surgery

My husband had the Whipple surgery in November of 2006. At the time, we thought he had pancreatic cancer. After the pathology report came back, we found out he actually had bile duct cancer. We knew the odds of survival were not much better but remained optimistic. I am happy to say that Scott has beaten the odds. This summer, Scott had surgery to remove a cancerous tumor in his lung. We were told with 99% certainty that this was not related to the bile duct cancer. Scott has beaten bile duct cancer and lung cancer but cannot gain any weight. In the last two years he has lost 50 pounds. We have been to a doctor at KU who told him to eat more fat even though the fat levels in his stools were off the chart. We went to the Mayo clinic this summer and were told that he needed to be on a low fat diet and that he probably had food allergies. We have tried low fat diets, lactose free diets, and gluten free diets. We have increased the amount of Creon that he was taken only to be told that he was taking to much. He has taken several cycles of Xifaxin to kill off the bacteria overgrowth in his intestines. Nothing is helping!!! We are not sure what to do.

My husband is 44 years old. He is 6’1 and weighed 220 pounds in 2006. Today, he is 135 and looks like a little old man. He is malnourished and spends most of his day in the bathroom. It doesn’t matter what he eats or how much he eats. Everything goes right through him. There have been several nights that he has said he hopes he doesn’t wake up. He is sick of being sick. We are looking for any help that you have to give.