Thanks, Gavin. I should explain further:
DIA http://www.diahome.org/sitecore/content/Home/About-DIA
has established a patient advocacy consortium. Each year DIA offers grants to advocates representing a disease specific organization. I was one of the lucky ones chosen and now am considered a DIA Advocacy Alumni.
Fast forward: In 2012, at the DIA conference, Philadelphia, I presented to the Stakeholders the position patient focused foundations such as ours hold in regards to patient outreach and possible clinical trial accrual.
Added to this, I had the opportunity to meet up with our Kris and Karen – and that alone was worth the trip.
Hugs
Marion
P.S. you most likely know to click on the slide in order to follow the entire presentation.