First time posting

Discussion Board Forums Introductions! First time posting

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  • #96155
    debnorcal
    Moderator

    Hi and welcome to our discussion group.  We have many caring and knowledgeable members that are happy to provide information, share their experiences, etc. also, the search function can be very useful in finding threads on topics of interest.

    debbie

     

    #96138
    middlesister1
    Moderator

    Hi,

    It is quite a lot and will take you a while to adjust.  Many describe it as a roller coaster ride.  As a new patient, I just want you to know that although this is a rare and nasty disease, there is hope.  Most important is to get opinions from a major cancer center-  an interdisciplinary team is important to ensure that all treatment options are being considered.

    And, if you haven’t looked through the main foundation page, there is a section with info for newly diagnosed

    https://cholangiocarcinoma.org/newly-dx/

    And, always good to read through some of the survivor stories.

    Best wishes and hope to hear more from you when you are ready,

    Catherine

     

    #96131
    Kwsmith
    Spectator

    I am very grateful to this page, this information and this foundation.  This has been a journey I’m still encompassing, wrapping my head around.

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