1.5years survivor start another journey

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Viewing 12 posts - 1 through 12 (of 12 total)
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  • April 3, 2015 at 6:21 am #86711
    iowagirl
    Member

    H Tze, It was good to hear from you again on the discussion boards and get an update about your wife’s treatment. I’m glad to hear that you have a new plan of attack to treat the cancer with chemo. Please keep us updated as to how your wife is doing.

    Julie T.

    April 3, 2015 at 4:09 am #86710
    lainy
    Spectator

    Dear H TZE, you never know unless you try! If you enter Gem/Xeloda in our Search engine other posts should appear on this subject so you can see what others thought about it. Sending much good luck and good wishes to your wife on this new chemo cocktail. Thank you for updating us and please let us know how she progresses.

    April 3, 2015 at 3:10 am #86709
    h-tze
    Member

    Hi everyone, just an update, the hospital accept to my wife request on starting chemo with Gem and Xeloda, 2weeks on 1 week off for 6 cycle, not sure is that good or not but we gonna try anyway.

    March 26, 2015 at 4:16 am #86708
    mbachini
    Moderator

    H Tze,

    I am happy to hear your wife is getting better and recovery is going well. I am not able to give you any advice on whether to do chemo or not……maybe a 3rd opinion would be in order since you have two different suggestions. Hoping everything continues to go well and please keep us informed on how your wife is doing. Take care!
    Melinda

    March 23, 2015 at 6:40 pm #86707
    h-tze
    Member

    Hi all, sorry for the late reply, my wife is getting better and recovery in this month after the surgery, she did the brain radiotherapy with the “tomo therapy” machine, 13 shoots in total.
    She don’t have much problem with this treatment, no headache, didn’t drop appetite, only loss all her hair and feel tired after each treatment,.
    Now we still deciding should she do the chemotherapy or not (the private Dr. Suggested my wife to have gem+Xeloda for maybe 6 months treatment, but the government Dr. Suggested we don’t do any chemo unless we found other place got cancer.
    Any suggestion?

    February 17, 2015 at 8:09 am #86706
    marions
    Moderator

    H Tze……wanted to chime in and congratulate your wife on the successful surgery. As the others have mentioned, we have only seen one case of CCA metastases to the brain. So glad that it was caught in time and wish for a speedy recovery.
    Hugs,
    Marion

    February 16, 2015 at 10:58 pm #86705
    mbachini
    Moderator

    I did a search on our site under brain mets, this is one case I found….
    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=11757
    it is very rare….but does happen. I am glad your wife had surgery and pray her recovery goes well. Thanks for keeping us updated, and please continue to do so!
    Melinda

    February 13, 2015 at 10:01 am #86704
    gavin
    Moderator

    Hi H Tze,

    Thanks for the update on your wife and it is great to see you on here again! Sorry to hear the latest news from you and yes it is rare for CC to met to the brain. I struggle to remember ever hearing of that so I can’t be of much help on this I am afraid.

    I am glad to hear that surgery was an option and has now been done and I so hope that it all goes as planned and that your wife will make a speedy recovery from it. Please keep us updated on everything and you know that we are here for you. Keeping my fingers crossed for you!

    My best wishes to you and your wife,

    Gavin

    February 13, 2015 at 3:51 am #86703
    h-tze
    Member

    Thanks, I’ll update her status when the report comes out.

    February 12, 2015 at 10:32 pm #86702
    iowagirl
    Member

    H Tze,

    Her doctor is right. It is extremely rare for CC to met to the brain. I did some research about it when I was first diagnosed a year ago, and at that time, I could only fine one known case of a CC met to the brain. I’m so sorry to hear that your dear wife has had some kind of cancer, (a glandular type) start growing in her brain. Hopefully, they got it all and it was just a bad stroke of luck that it happened….and now that she’s had surgery, that will be that. I’m sure the doctors will have more thoughts as to what to do next, if anything. One thing, since this would be so rare to be CC again…in the brain…if that is what it is….then it is so rare that they will most likely be giving her a LOT of attention..consulting with other doctors….writing it up for medical journals, etc. That’s how I found out about the one known case. We are here for you if you have any questions that we might be able to answer and we’re hoping for the best for your wife’s recovery.

    February 12, 2015 at 7:54 pm #86701
    lainy
    Spectator

    Dear HTZ, good to see you on here but not good to read about your wife. I am so sorry for what she had to just go through. I know that many cancers can met to other places but not sure of CC and the brain. I am praying and wishing for her total and complete recovery. Please let us know about her progress and know that we are thinking about her and wishing you both the very best.

    February 12, 2015 at 7:38 pm #10945
    h-tze
    Member

    Hi, it’s been a while that I haven’t been here, how’s everyone? For those didn’t know me can check my older post about my wife journey of CC.

    1.5years after her treatment, she did a pet scan (whole body without head) in dec 2014, we were so happy that its all clean and clear.

    But in Jan, she start having headache, and she keep forgotten things, we thought its just the late reaction of her chemo. Last week she start having problems with number and seeing things much smaller than usual, we lived in this apartment building for years, but she forgot how to come home after getting off the bus which she did that everyday.

    So we decided to see a specialist and refer to do a brain CT. So then you should know what happened now…..
    She did a 6 hours operation today, 4cm tumor, frozen section shows it should be metastatic adenocarcinoma.

    Is there any other case like hers? Dr said its really really rare CC goes to brain!?

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