1st chemo day
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Hi Gavin and Lainy!
Thank you so much for your response. Lainy, you asked where my cancer is – wouldn’t you know, it’s located smack dab in the middle! I know that makes surgery a bit more difficult down the road but Dr. Javie said it is not completely out of the question so I have a lot of hope.
Unfortunately, my 1st wonderful chemo experience didn’t stay wonderful. By the 3rd day at 4:30 am, a wave of nausea came over me and it kept coming and kept coming – pounding headache as a little bonus. I really didn’t want to call my kids AGAIN because it seems their lives are constantly revolving on doing yet something else for Mom, but by 6 pm (when I was pretty sure I was dying – lol) I finally called and here come the troops! Dr wanted me to go to the ER., but when I finally kept down ginger ale, I was able to avoid that, thank heaven. Yesterday was better and today even better, though still a bit weak. No matter what, I’m getting on a plane for Oregon on Tuesday morning for family reunion!! If anyone has an an idea how I can get a big surge of energy, I could use it cause we have a whole week of fun planned and I don’t want to miss out !
Btw, even before chemo began, my thick hair started coming out by the handfuls – what’s up with that?? Thx for listening!Hi Vicki,
Welcome to the site. Sorry that you had to find us all here and sorry to hear of your diagnosis. But glad that you’ve joined us all here as you are so in the best place for support and help and you will get loads of each from all of us. I know it’s not the same as a face to face group, but get a coffee none the less and join in with us all and we’ll do our best for you!
Glad to hear that you are with Dr Javle and I know you are in good hands. He has much experience with CC and has treated many from this site too. Glad to hear that your first chemo session went so well and hoping that the rest of them go equally smoothly too. And also, loving your positive attitude too! That is great to hear and will carry you far in this.
Please keep coming back Vicki and if you have questions then feel free to ask and we’ll do oyr best to answer them if we can. You are not alone in this. We are here for you and we care.
My best wishes to you,
Gavin
Dear Vicki, welcome to the best place to be for CC support. It sounds like you have already hit the jackpot and I hope the chemo keeps on being a breeze. Where is your CC located? I can tell you have a great attitude and that will help you out a ton. There are some members in Southern Fla. and I hope they get in touch with you as there is nothing like meeting up with someone else from this site. You are right about there not “in person” support groups due to the rarity of the Cancer. I tried with Mayo here in Phoenix but it just won’t work. Again congratulation on your good decisions and please keep us posted as we truly care.
Hi! My name is Vicki and I live in south Florida in Boca Raton. I have just been diagnosed as of July 18th. My doctor is Dr. Javle at MD Anderson in Houston and I just think he is wonderful!
I decided to come back to Florida for my chemo treatments. Just had my first one yesterday
and was amazed at how easy it was. Absolutely no nausea, chills, fever, nothing bad. So guess
God has put some extra angels on duty for me.
I really wish there was a support group meeting to go to, but I guess since this
is such a rare cancer, there aren’t enough people. I would very much like to connect with
someone dealing with this, get together for coffee and talk. If you are anywhere in or near
South Florida, I would be willing to drive and meet up with you. My email address is
vdavis@circaone.com
I have a very positive, upbeat attitude and am expecting a miracle as I’m sure we
all are. There are a lot of people praying for me and I’ll be praying for all of you!
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