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3 years since diagnosis

Discussion Board Forums Survivor Stories 3 years since diagnosis

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  • #94013
    hercules
    Moderator

    Julie, you have fought an incredible battle, had numerous setbacks and you got back up and kept going,you too are a cc miracle, and winning that fight has beat up your poor body. Just keep getting back up and keep being a winner. You are a champion of this board, I hope you have the strength to fight on as you have, god bless, Pat

    #94012
    lainy
    Member

    To My Sister from another Mother. WOWSER!!! I am doing cartwheels, clean scans all the way. You are one courageous, smart and fabulous woman. I have a feeling that MDS does not know what it is up against with a fighter like you. Don’t freeze in Iowa and we will try to stay warm in SLC .

    #94011
    iowagirl
    Member

    Thanks Marion. I decided that it was time to post as a “survivor” of ICC. Even though the MDS has me in its grips right now, it doesn’t diminish the three years since my ICC diagnosis.

    Catherine, yes, one thing at a time…..at least that was my hope and prayerss. Withouut the ICC to deal with, I can concentrate on what I need to do for the MDS and hope for a remission for now……..and in the meantime maybe some new treatment will come along.

    Julie

    #94010
    middlesister1
    Moderator

    Ok- you got this CC under control (yeah!!!!!), next the MDS. Easy peasy.

    Love and hugs,
    Catherine

    #94009
    marions
    Moderator

    Julie…..SO THRILLED TO SEE YOU POST HERE. CONGRATULATIONS.

    Hugs
    Marion

    #12970
    iowagirl
    Member

    I was diagnosed with a 5 cm intrahepatic tumor (ICC) Jan 2014. Since then, I have had :

    1. Feb 28th 2014, Resection clean 2.2 cm margins, no mets
    2. Post surgery 6 rounds gem-cis
    3. Dec 2015 Recurrence with surgery to remove new, 2.2 cm tumor along original resection line
    4. July 2016 Recurrence with radio-frequency ablation to destroy 1.5 cm tumor.
    5. November 2016, diagnosed with MDS…a result of the Gem-Cis chemo . Currently, median survival of MDS I have is 1-2 years.

    The good news……scans today were clear….no evidence of ICC recurrence.

    Julie

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