Have not posted in a long while and decided I needed to give back some of the great encouragement a fellow ICC fighter, who just recently lost her battle provided to me over the passed years. Thank you and God’s speed to you Patty!
I am now 7yrs, 6mos., Post diagnosis and resection surgery. Age 53 at initial diagnosis and was a fortuitous identification as the testing was totally unrelated to my unknown ICC.
Subsequently to my initial surgery, I underwent 4 VATS to remove ICC Mets in my lungs and 3 SBRT to address 3 other Mets in my lungs over the first 5 years after my initial diagnosis and resection. Over the past 2.5 years I have had no evidence of disease in either my liver or lungs. No chemo at all. No other treatments.
Over the past 4 years, Patty Corcoran and I kept track of each other as she was diagnosed a month prior to me and by my limited reading was the only long term survivor that I had found. Unfortunately, just a few weeks ago we lost Patty as she was no longer able to keep this dreaded monster at bay.
So why my reengagement after so long. Well, I really never left, just read more than commenting and now I am back to trying to understand what the future may be. There is very little that I have found out there of long term survivor stories or insights. I want to continue to be one of those and I want to know of others such that I can continue to look forward with even more confidence. Finally, I wanted to share, as Patty shared with me in the hopes of helping others and to increase the voice and volume of hope for long term conquering this demon!