A Case of Unresectable Combined Hepatocellular-Cholangiocarcinoma Successfully T
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Hi Gap and Mary,
Thanks loads! Yes Gap the Pubmed site is an excellent resource going back many years full of research and you can just search within it for anything specific that you are wanting to look at etc.
On Pubmed on the right hand side of the screen look for where it says “Sorted by:best match”. Click on the box that says display options. That then brings up a scroll down menu that will allow you to search whatever way you want to. For instance, I look at pubmed each day for CC pieces and click on the “best Match” then click on “most recent” and that brings up the newest CC pieces as they come onto the site so I can put them on here.
You could do the above as well to see the latest pieces then just work backwards through them if you want. Or you can search by abstracts, authors etc. Reading the headline of an abstract, then the background to it then jumping to the conclusion to see what the outcome is may also save you some time.
Like Mary says, printing out some of the research that you find to take to meetings with the onc, med team etc is a great idea and should also help with saving time too as the onc etc will be able to read it instantly if they have not before. Thanks Mary for bring this idea up here! I know what you mean as well Gap with wanting to find out as much as you can in this situation and that is exactly what I felt like when my dad was diagnosed in 08 and is why I ended up here with the CCF.
My best as always to both of you,
Gavin
Hi Gap,
Thank you for your posting. Your note is a reminder of one of the challenges of having a rare and serious illness. We wind up doing a great deal of research, trying to figure out an unfamiliar vocabulary. I learned that my busy doctors did not always have the bandwidth to be constantly looking for new research – they had many patients with different cancers, and never enough time. I usually bring some research with me to my appointments – not the whole library of course, but I usually pick one item I want to ask about. At my last meeting, for example, I brought a graph showing cholangiocarcinoma recurrence rates after five years because I wanted to defend the point that it is not yet time for me to stop having scans.
I try to be careful to recognize I am not a doctor and my doctors are the experts, but our roles as patients and caregivers in keeping an eye on medical developments are important and no doubt appreciated by our medical providers.
Big thanks to Gavin in helping our community stay up to date with the rapid advances in the field. Gap, I hope your husband gets good news from his upcoming scan.
Regards, Mary
Thank you for the kind reply, Gavin. I will spend a lot of time looking thru these links. The PubMed.gov site seems like a rabbit hole I could easily go down and explore for hours and hours… a wonderful resource. I hope to learn as much as I can about cHCC-CC if for no other reason than to have a clearer understanding of what the doctor is explaining to us or better insight into what the doctor’s expectations for treatment realistically are when he tells us he’s “cautiously optimistic.” I also realize there’s a psychological component to my desire to research this cancer so extensively — it’s a way for me to feel as though I’m exerting some level of control over a situation I feel powerless against.
Hi Gap,
Glad to be of help in any way if I can and hope that the link posted helped, even if only in a small way. Thanks for letting us know about your husband and I am real glad to hear that he had great success with his Gem/Cis. I hope for further success for him with his treatments and will keep my fingers crossed.
If I see and more cHCC CC articles I will post them here but here are some links etc that may be of interest to you both.
https://pubmed.ncbi.nlm.nih.gov/?term=cholangiocarcinoma+hepatocellular+carcinoma&sort=date
This link will have further links within the page. Just scroll down and through the page.
This one too on Pubmed – https://pubmed.ncbi.nlm.nih.gov/?term=chcc+cc&sort=date
A google serach gives this result – https://www.google.com/search?q=pubmed+combined+chcc+cc&rlz=1C1ASUM_enGB770GB770&ei=f8KAYqriOJqQhbIP-vu30AQ&ved=0ahUKEwjqndK-k-H3AhUaSEEAHfr9DUoQ4dUDCA4&uact=5&oq=pubmed+combined+chcc+cc&gs_lcp=Cgdnd3Mtd2l6EANKBAhBGAFKBAhGGABQuQ9YuQ9g9hhoAXAAeACAAV6IAV6SAQExmAEAoAEBwAEB&sclient=gws-wiz
I hope some of that is useful and if I can help in any way please let me know.
My best wishes to you and your husband.
Gavin
Thank you for finding and posting this. I’m eager for any cHCC-CC articles as my husband has this combined cancer. His doctor has told us that predictions for treatment success and any time frames are going to be based on less data, and therefore less certainty, due to this cancer being more rare. So far so good for my husband as he did have great success with GemCis over the winter (no visible signs of the liver tumor and now only modest uptake in two lung nodules and a chest node). He’s currently receiving immunotherapy — Opdivo and Yervoy — and his biomarkers have dropped a bit in response. We’ll know more clearly how the immunotherapy is going when he has a PET scan in early June. Meanwhile, I scour the internet for more information.
A Case of Unresectable Combined Hepatocellular-Cholangiocarcinoma Successfully Treated with Lenvatinib
https://pubmed.ncbi.nlm.nih.gov/35529291/
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