July 20, 2014 at 5:48 am #83640gavinModerator
Some more links for you on pain, hope they are of use and hoping as well that your husbands pain can be managed. Getting pain controlled is of the utmost importance I would argue.
My best to you both,
GavinJuly 19, 2014 at 5:53 pm #83639jtaylor1112Member
Kris, my husband was diagnosed with cholangiocarcinoma on August 2 and is being treated at MD Anderson. It had metastasized to his sternum so in January they removed half his liver and most of his sternum, but his margins weren’t clean. The gen/cis that he’d had success with before surgery didn’t work after, and it spread to his lungs, hip, and spread in his remaining sternum and liver. Dr Javle put him on FOLFIRINOX but, after one treatment, a clinical trial came open that Dr J felt would be of better benefit. I posted this trial on the Clinical Studies part of these discussion boards; it is Phase II, Single Arm Study of BGJ398 in Patients With Advanced Cholangiocarcinoma. He will begin this on July 23.
He had been on Oxycotin & Oxycodone but they weren’t doing the job, so yesterday they switched him to methadone w hydromorphone for breakthrough pain. He also was just put on Lyrica for pain remaining from the surgery. Granted, he just started these new meds, but after 24 hrs he doesn’t feel any better.
The pain has really impacted his quality of life, of which he feels he has none. We’ll continue working w the pain mgt docs at MDA, but I’m anxious to move forward with other methods too to help him feel better.July 19, 2014 at 5:06 am #83638gavinModerator
My dad never used this but did use reiki for relaxation. Some links for you that I hope wil be of interest.
Hope some of these are of use to you and good luck with it all.
GavinJuly 19, 2014 at 4:24 am #83637kvollandMember
While I have not done this myself I know of people who have had success with both chronic and acute pain. I believe it would be worth a try and it certainly won’t hurt anything.
On this topic, is your husband on any oral pain medications and if so what is he taking? And please tell us a little more about what he has and where he is being treated. We may have even more information for you.
KrisVJuly 17, 2014 at 5:52 pm #10314jtaylor1112Member
Has anyone had success with acupuncture?
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