Discussion Board Forums New Developments AMMF News from the UK

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  • #58813

    Thank you all!

    PCL1029 – my pleasure to get some info for you, little though it was!

    We’ll just keep on keeping on …

    Helen x

    #58812
    pcl1029
    Member

    Hi Helen,
    The insight from a specialist through your interviewed about surgery,radiation and chemotherapy are valuable and educational. I learned a lot in the way that how the specialist is thinking about this disease.
    A BIG THANKYOU to you,Helen. And please thanks the Professsor for me.
    The BILCAP trial, if the patient is in the control arm , the idea that you only receive placebo is tough to take. But the BILCAP study is important in a way that if it works, it will provide a relatively inexpensive treatment,even is not a cure ,to a much larger international patient population.
    The thinking of CC as systemic will make me refocusing of my research reading.
    PDT may not be the best palliative radiation treatment for CC,but I think the cyberknife(one form of IBRT) is still in the card as hospitals continue to advertise this relative new technique. Proton and ion beams therapy are not far behind.

    Thanks Helen and
    God bless.

    #58811
    gavin
    Moderator

    Thanks Helen! Great work, as always!!

    Hugs,

    Gavin

    #58810
    marions
    Moderator

    Helen…thank you for passing this on to the patient community. Great job.
    Hugs
    Marion

    #58809
    lainy
    Participant

    Thank you Helen, this is truly remarkable. What great strides you are making over the water! Thank you so very much for all you do!

    #6500

    AMMF has been asked to join the NCRI* Hepatobiliary subcommittee, to represent CC patients here in the UK. This is really good news and we hope it will enable us to raise further questions and concerns on behalf of our supporters, and to receive answers and current thinking from those at the forefront of work on cholangiocarcinoma. A report on the first meeting attended by AMMF is now on the website …

    http://www.ammf.org.uk/2012/03/12/cc-meeting-report

    With love and positive thoughts for all our CC family.

    Helen xx

    *NCRI (the National Cancer Research Institute) is a UK-wide partnership between the government, charity and industry which promotes co-operation in cancer research among the 22 member organisations for the benefit of patients, the public and the scientific community.

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