Any feedback are greatly appreciated.
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Houstonian76,
I am so sorry to hear about your father. I hope the wonderful memories will comfort you.
Charlene Eloi
Daughter of David CookDear Houstoian76, My deepest sympathies for your lost. May your beloved father rest in peace.
God Bless,
Jeff G.Dear Houstonian76,
My sympathies on the passing of your beloved father. I am sure he really appreciated the extra time you took to be with him and take care of him. He was blessed to have a loving family. Prayers for you and your family during your grieving.
Karenhoustonian76,
I am so sorry to hear that your dad passed away. I can only imagine your pain. How fortunate that you had the opportunity to spend so much time with him before he passed. I also have my father suffering with this disease and it scares me to death. The pain is unbearable.
May God bless you and your family and may you feel his loving comfort.First I wanted to thank you guys for all the support but unfortunately My Father past away on June 30, 2008 after 6 months of the long battle with cancer. I’m very sad and depressed about my dad being gone, its going to be hard for me to wake up and live my life but im sure hes happy in heaven and being taking care of God. Sara to answer your question yes im in houston and my dad went to MD Anderson. I just couldnt believe the doctor gave up on him ,knowing that MD Anderson is one of the best cancer facilities in the world but im sure they did their best hopefully. It would be a pleasure to meet and talk to you in houston.
Alicia I’m very sorry about your husband and I will keep him on my prayers. Make sure to motivate him to keep his fighting spirit and beating this evil desease. Another advice I can give you if your husband is ever given the hospice option is to make sure to choose the home hospice because you can prolong his life in home enviroment rather than in the hospice facility. After so many months in and out, all the chemos that my dad went through he was so happy to come home and spend the last 3 weeks at home. We cook or bought whatever he wanted for food. I would also take him for a walk to our lake close to our house and he even sang frank sinatra songs in our karaoke machine. I took off couple months from work to spend those last days with him and im so glad that I did. Also I’m thankful he was able to spend my birthday with him before he past away. Just make sure to tell him how you feel, how much you love him and appreciate everything that he has done for you. Only you will know how your husband is feeling if hes getting weaker or stronger but make sure to tell him that you love him repeatedly because thats very important with somebody who has cancer. Well good luck and I wont forget to keep him on my prayer every night.
John,
My husband(his name is John ) also receiced the hospice talk last week. He just turned 53 Saturday and asked for another choice. The doctor has given him a new treatment with 3 different chemos its a long shot and the doctor doesn’t give us much hope. At his blood work last week his bili was 17.6 so don’t let then tell you that no treatment is out there. Unfortunatly, it just isn’t all that effective in most cases. Your dad must weight the option and make a choice thars right for him. Any chemo takes it toll on the body and in some cases its a quality verses quanity choice. Is your father able to make his prefrences known? If so , in my opinion I would follow his wishes.
If its any consolation we’re in the same sinking boat.
Love , prayers, and best wishes.
Alice
John,
In addition to what the others have asked, are you here in Houston? Is your dad seeing someone at MD Anderson? It is all very frustrating to read – I hate to see that he’s been turned away with no options.
I’m here in Houston, and would be happy to meet up and talk at any time.
-s
John,
How old is your father? My mom is 66 and I really think age is a big factor, from her experience, this cancer takes no prisoners and ravages the body. There is research being done but we find that my mother doesn’t qualify for the trials. It sounds like your father would not qualify either but here is a post I found in the Research section of this board, which offers some hope for those with advanced cholangiocarcinoma:
http://cholangiocarcinoma.org/punbb/viewtopic.php?id=1455
You can find trials at:
http://www.clinicaltrials.gov/
My mother is taking milk thistle and there are posts on here on all kinds of supplements:
http://cholangiocarcinoma.org/punbb/viewtopic.php?pid=7669
http://cholangiocarcinoma.org/punbb/viewtopic.php?id=479
http://cholangiocarcinoma.org/punbb/viewtopic.php?id=1296
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=173
Hey John…I would like to send a little encouragement your way…when were back in Minnesota at Mayo….the docs gave Lee 2 months to live because the cancer had spread….he was the sickest he had ever been…much like your father….we actually believed them…however, we knew that God was the one who could say how long Lee had…he was supposed to “be gone” last week and is better now than ever!!!! Do what the others have said…keep pressing on and see what else can be done!
Heather
Hi Barbara,
Last year May, after a broken off surgery, my husband got 2-3 months as a life prediction. That is a year ago now. Hang in there, don’t give up. Try to do the things that make your lifes worthwhile, let him eat well and ask for second opinions. We are enjoying every day as a gift and it makes us happy! Good luck to you two.
Iris.Hi Barbara….. Sorry to hear of your husband Frank’s condition. Not to be nosey but what has been done for Frank? Has any stents been put in or a line to get his billibrium count down? Where is his tumors located? Also, the standard question, has he had more than one opinion of his condition? I have several tumors but that does’nt mean I’v’e only got two months. Has he been actually diagnosed with scans and biopsy. Has he been having pain and juandice? I’m sorry to ask so much about such an emotional subject, I’s just hard to suggest anything not knowing a little more. Barbara please scroll to the top of page and click on Newly Diagnosed or Cholangiocarcinoma. It will give you a lot of information you might want to know. If you have any specific questions, please do post and ask as someone will suggest what ever they may have is experienced.
Again , I’m so sorry this disease has touched your life but if we can suggest something to help in some way we will.
God Bless,
Jeff G.Hello,
My name is Barbara, my husband is Frank. His doctor gives him about 2 months. She said that because his bilirubin in 5.7, there are no trials available for him. And because there are too many tumors, radiation, transplant, or any of the other newer methods won’t work. I am not ready to give up. If anyone has any suggestions, please let me know. Thanks.Hello,
My name is Barbara, my husband is Frank. His doctor gives him about 2 months. She said that because his bilirubin in 5.7, there are no trials available for him. And because there are too many tumors, radiation, transplant, or any of the other newer methods won’t work. I am not ready to give up. If anyone has any suggestions, please let me know. Thanks.
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