June 11, 2008 at 1:54 am #20291sarah-dMember
I am so very sorry to hear about your dad and can understand your fear and frustration. Were stents ever mentioned? I had 2 placed when my billi was 13, because they wouldn’t do surgery with it that high. My thoughts and prayers are with you at this time. SarahJune 10, 2008 at 4:03 pm #20290lainyParticipant
We can just feel your pain and frustration. My husband jaundiced and had CC in the bile duct valve. We were fortunate that it had not spread and he had a Whipple Surgery. That was 2 1/2 years ago. We found out last week that it has come back where the duodenum used to be. We are seeing a doctor tomorrow who does cyber knife surgeries and hoping he will take Teddy on and do it quickly. The point is this cancer is a silent monster until it rears it ugly head.
We are so sorry you had to join our little community this way but it sure helps to write about it. Lots of very thoughtful, wonderful people on this site.
Our thoughts and prayers go out to you and your family. LainyJune 10, 2008 at 11:13 am #20289jeffgMember
Hi John.. So sorry to here about your dad. Did you get a second opinion ? Did any doctors think placement of a stent would not give him comfort and extend his life? or put in a billary Drain? Maybe that has already been done, to reduce the juandice and get he bile flowing? What age is your dad? Maybe it is gone to far but if extending life without causing pain and suffering is what is seek , may a second opinion be something to consider. It sounds as though he has had a rough time health wise though and maybe he is ready to let go if he’s really eldery. It’s so tuff and painful at any age as you said. My heart felt feelings go out to you and your Family.
Jeff G.June 10, 2008 at 5:29 am #20288marionsModerator
I welcome you to our site although, I am so sorry for the circumstances leading you here.
The news you have received is devastating to anyone, no matter what age we are. My heart goes out to you and to your family.
Generally, I believe in gathering several opinions from varied sources before accepting a diagnoses especially, as it is in your DadJune 10, 2008 at 4:42 am #1276houstonian76Member
Hello Guys my name is John and my dad has Cholangiocarnoma since december 2007. The first cancer my dad had was Lymphoma in 2005 and went to chemo successfully so he was in remission stage. After he started working out and eating the healthiest diet you can think of. On December 07, 2007 we all went on a family cruise and we notice his skin was turning yellow. So we went to the doctor and he was diagnosed with cc with jaundice being one of the side effects. He then started his chemo and finish his chemo on 05/01/08. Then on 05/02/08 he started feeling very sick,skin was very pale, also having chills and then we had to take to the ER. They found out that he had an infection and also found out the tumor was spreading all over his bile duct. The plan was he would take antibiotics for 2 weeks and they would start chemo again only if his bilurubin would be below 5 if not they can’t start chemo and they predicted only 3 months to live. The infection went away but his bilurubin was very high,in fact it was 15. So the doctor told us today that he would go to a hospice facility or he has the option to go back home to spend his last days and the hospice would set up all the equipment and have the nurses come to the house. I just feel really depressed and sad right now, also helpless. I was wondering if anybody has ran across this situation and have any other options because the doctor told us right now his cancer is the last stage and critical and there is no other options. Any comments or feedback would be appreciated.
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