Discussion Board Forums General Discussion Anyone with the disease have small kids (under 12?)

Viewing 5 posts - 16 through 20 (of 20 total)
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  • #16755
    thecdr
    Member

    thanks to all, and yes I have wonderful support. It’s the every day stuff, like, GETTING HIM UP IN THE MORNING!!!! :-O Yes, he does know what is going on, at least as much as a 10 year old can I guess. He is one of the reasons I am having such a hard time dealing with the disease, not for the way he acts but for all the terrible things that have been done to him. You see, I adopted him at age 5 from Guatemala after a pretty horrendous existence. As a result of abuse, genetics, whatever he is bipolar, severe abandonment issues, ptsd, you name it, but despite it all he is one of the sweetest little boys you could ever meet. So now I am grappling with God and why he would do something like this to a little boy?
    What we are trying to do is keep as normal as possible, I need it, he needs it. He needs his mom to yell at him when he doesn’t behave, I need to yell at him when he doesn’t behave, we need life to be normal as long as we can.
    One of the really “aggravating” things about this disease is that I feel like Damacles’ sword is dangling over my head, I want desperately to beat this thing but sometimes I wonder if I have the strength! Of course, I used to say that even before I had cancer!

    #16754
    kate-g
    Member

    CDR, your post made me laugh, the last sentence! Oh bless, kids are bloody hard work at the best of times! Have you friends and family who can give you a break? Does your boy know what is going on? Has he any idea? I’m sure you aren’t wanting to scare him, but at the same time I’m guessing he must understand that you are unwell? Is he playing up more than usual? It may be fear.
    Wish I could help….but it would mean sticking him on a plane to UK!!
    Hope you are OK!

    #16753
    seasheller
    Member

    Dear “cdr” — It’s so difficult to even imagine you battling CC being alone and with the care of a 10 yr. old. besides. Is there any kind of a support group in your area that could help you by doing outside activities with your child to give you a break once in a while? A church group or something! Do you have family that can help? Maybe your family doctor can guide you. You are in my thoughts and prayers!!! ~~ Jean

    #16752
    jmoneypenny
    Member

    Hi cdr,
    If it’s any consolation (which I’m sure it isn’t), I don’t have cc and my four-year-old is sucking the life out of me!! I can’t even imagine how much worse YOUR situation is!
    -Joyce

    #680
    thecdr
    Member

    I am a single parent battling this thing, and I swear what is going to defeat me is my 10 year old! I am so exhausted from the chemo and the cancer and just not feeling good, and my beloved son insists on sucking the very essence out of me. I know, he’s being 10, but oh my GAWD……

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