April 10th is the day
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Amy, I hope you are enjoying the beautiful Catalina Island right now. Sending positive thoughts and wishes for a successful surgery on the 10th. Hugs. Nancy
Amy,
Wishing your mom the best on the 10th. My wife was in the waiting mode during my surgery and it was about 2 hours before they came out and told her they were proceeding and the gall bladder was out. The Dr. didn’t come out, the nurse did. So he’s probably right if the doctor himself comes out it can’t be a good situation. Prayers are coming your way, and keep that positive attitude everywhere, it helps!!!Amy- I’m glad you found us, but sorry you had to.
I will be praying for your mother.
Just a side note—My husband and I lost our first child to HLHS.
He was only 4 days old. Its awesome to hear your daughter is doing good!!Please keep us updated on your mother. We are here for you.
Amy, sending positive vibes your way, try to take one day at a time, my mom is going this and all we can really do is pray and try to stay positive for our loved ones. Please keep us posted.
Hugs!!!!
Amy, welcome to our extraordinary family and of course am sorry you had to find us! We are a crazy and funny lot as with all our problems we LOVE the word ‘surgery’. I know what you mean about the bedside manners but I have found lately that the best seem to be the ones who are more straight and to the point. BTW your Mom’s surgeon said exactly what my husband’s surgeon had said, “the longer I am in surgery the better the news”.
I think that is a wonderful trip you have planned. I love Catalina. Are you living in SFO? I had a very elderly Aunt who lived at 47th Ave and you could see the Seals at Seals Cliff from her house. Also have a cousin who lives in the Presidio AND my husband Teddy’s cousin owns Aliotos on the Wharf.
I am wishing your family all the very best and please keep us posted as we truly care!hi, as most of you I don’t even know where to start. My healthy, young (70 but one of those you’d think was 60) vibrant mom was diagnosed with cc after a short sickness, jaundice, weight loss in January/February.
We had a story similar to Jessica, who just posted, with my moms surgeon. We thought we were going in to hear about the surgery details knowing very little about cc at the time. He dropped the bomb right away saying surgery is a small possibility, but not sure he could e en do it, and without it she has maybe 2 years. Omg, sick and devastated!! He was so abrupt and seemed so hesitant to encourage surgery, yet said ” your healthy and vibrant you might want to try since it’s your only real hope.”
Side note, I’ve dealt with surgeons and doctors my 12 year old daughters entire life, she has HLHS and has had 3 open heart surgeries, so I’m nit naive to bedside manner, etc. I get it who cares about their bedside manner if they are excellent surgeons but come on!!!
Ok…so after that day we went on to get 3 other opinions here in the San Francisco bay area, they basically all said the same thing BUT with much more desire, or hope maybe that they could do the surgery successfully. They all agreed our original surgeon ( who is the only one on mom’s insurance) is excellent though. So looks like all our hope is on this fait full date of April 10th, as no one can know if the survey is possible until they are actually in there.
So my mom is going into this surgery with more hope, positivity and strength you can imagine, she refuses to give up on the wonderful life she has and her 6 grandkids who adore her!! it’s just SO scary that everything depends on this. The surgeon said if we see him within an hour after surgery starts it’s not
A good sign.
All I and hundreds of our friends and family are doing is praying to God every chance we get they can perform the surgery ( knowing it won’t be easy after) but worth everything.
We are all taking a family trip to Catalina Island the 5-8th, which was planned for her 70 th birthday in December. After that she heads to surgery. I’m so scared, I dream about it every night. I’m very thankful for this site and all of you sharing your story’s. Your amazing and I appreciate you reading this.
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