Awesome news!!! Update 8-24

Discussion Board › Forums › Good News / What’s Working › Awesome news!!! Update 8-24

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  • August 22, 2012 at 4:10 am #63809
    lainy
    Spectator

    Tiff, I am so very sorry about your Liza blue. I can tell how excited you are and it is late where you are but I guess I can’t blame you if you can’t sleep. I am just sitting here as there is nothing on TV and I keep watching here for more good news!

    August 22, 2012 at 3:42 am #63808
    tiff1496
    Member

    I’m soooooo excited!!!!

    I don’t even have words for the feeling I had today.
    But my heart still hurts for those that didn’t get good news. :-(
    Plus my sweet Liza blue died last week to FHC liver cancer. She was only 25.

    August 22, 2012 at 3:41 am #63807
    lainy
    Spectator

    Thoughts!? There is only one thought…you go girl!!!! I had a feeling! oH. THIS IS SUCH GOOD NEWS! sweeeeeeeet!

    August 22, 2012 at 3:31 am #7258
    tiff1496
    Member

    Update 8-24
    I had 4 different heart test today. I LOVE the Methodist hospital here in Houston. They treat patients with so much respect!! I think everything looked ok from what the people doing the tests said.
    Tomorrow is chemo #21 @ md Anderson!

    So we met with dr. Javle today to talk about my scans!!

    Wow y’all!!

    Here is some of the impression-
    The previously seen numerous foci of increased FDG avidity within the liver on the pet of 5/21/2012 appeared to have resolved or markedly decreased.
    Overall, findings would suggest improvement of disease

    No nodal hhermetabolism is seen within the abdomen or pelvis.
    Adrenal glands are unremarkable.

    Here is what I don’t understand— again seen is a previously noted level II lymph node is 1.1 x 0.8 cm, previously 1.5 x 0.8 cm. FDG avidity that previously mapped directly to this node has been previously SUV maximum 2.3 is not definitely seen today. Overall, by morphological criteria, this lesion appears to have probably slightly decreased in size.

    Now for the great news!!! Dr. Javle has sent my scans to a transplant team here in Houston!! We will meet with them tomorrow to see if I can start to process to get put on the list! Wow! I never thought we would get this far. I feel so blessed, and giving all the glory to God!

    About the Y90, he said its just not worth it. Too many people have bad side effects, and it might not even work. So it’s a no go! And I’m ok with that!

    So what is everyone’s thoughts on all this?!?!

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