Back in the hospital
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I can’t think of anything to add….except that I am thinking of you and sending healing thoughts and cyber hugs your way.
JulieGreat, you now are minus the infection and look attractive as well. Fluid around the lungs has to be next. After all, coughing spells and Karaoke don’t mix.
Thinking of you and sending tons of hugs your way,
MarionKris, hospital hair can be lovely! We are almost twins as I have a beautiful scar down each side of my head now. Going to dinner tonight with one married set of Grands but will wear a Cap so that diners around me don’t get upset. I think we should go to that horrible Chinese restaurant and both go bare headed. That will teach them to serve such awful food. Glad you are having visitors.
The blood infection is no longer growing in the cultures. So that’s one thing down. Unfortunately the cough is getting more productive. I now have a pleural effusion. Again. We’re gonna work on that then deal with the liver. The attending doc stops by every day. Today I asked him if it would be a drain or a needle aspiration. He looked at me and then called me Dr. Jacobson. lol
He’s not a radiologist so he can’t answer. That’s for a radiologist to decide after I get this cough under control.
I feel fine, and wish I could go home, but I understand the need to keep me here to heal. I had a couple of visitors today. I now have 3 caps and a scarf to cover the hospital hair!Kris,
Real sorry to hear that you are in the hospital and I so hope that they can deal with this, get it sorted and you can get back on your feet again. Will keep my fingers crossed for you and sending a ton of positive thoughts your way as well.
Big hug for you too,
Gavin
Kris,
I’m sorry to read that you are in the hospital with an infection, but glad they have identified the culprit and are beginning treatment. I hope you bounce back quickly and get to go back home soon.
Kris,
So sorry that things are so lousy for you right now. Like Lainy, truly hoping that the next report shows they figured out how to turn it around.
Take care,
CatherineKris, well, at least they did check for that. My gosh, girl, you sure don’t do things in a small way! I am sending the best vibes ever and am with you in spirit. Looking forward to the next report. Love you!
Kris…..can’t they do a Needle aspiration? You must get healthy and if that means “bumping” you off the trial then that may a reasonable choice to make. I have heard of some instances where participants continued treatment outside trial participation. Think that may be a possibility?
Hugs and a tidal wave of good wishes are heading your way,
MarionThe infection is called seraschia (spelling is probably wrong. I did phonetically)
The team was just here, and I’m not too happy about part of what the attending said. There’s an area in the liver he’s unsure about, but he thinks it’s an abscess. He mentioned a drain. That concerns me. I’m hoping we can come up with a different decision.
I’m on the antibiotic to fight that specific blood infection. I can’t take levaquin on the trial. There’s a list of Nono drugs. Everyone worked very hard to come up with a plan to keep me on the trial.Come on, Cookie, you know you have to get better for Stazi and for us. Kris this sounds so like the blood infections that Teddy used to get. I feel stupid asking but have they collected a blood culture? After the culture showed an infection they put him right on Levequin and bada bing bada boom the healing started. Only dif. is he did not cough. I am doing everything in my power to wish you a turn around! Thinking of you and sending hugs, { } { } { }
I just can’t seem to catch a break these past few months. I guess I shouldn’t complain, since for most of the 5+ years I’ve been battling this monster I’ve felt pretty healthy.
I’m making up for it now! I’m in the hospital with another blood infection and not sure what else. They’ve been running test after test. I’m a pincushion! They can’t draw blood cultures thru the port so since Tues I’ve been stuck 6 times! And I don’t have that many veins left! I’m not sure if my one vein got blown or I just got a hematoma. We shall see.
I’ve had a chest X-ray, ct scan and lots and lots of medical personnel visiting me. When I do something, I do it BIG!!
I’ve been spiking a fever of 103. So far today it’s only been 101 so I’m hoping something is going in the right direction. But I have this horrible cough. It’s strong and takes over my whole body. But nothing is coming up. So they are stumped. Tested me for the flu: nope. Chest X-ray shows a possible pleural effusion. But I don’t remember a body shaking cough when I had the first P.E. Between the coughing and the fever, it’s been fun. I need housekeeping to come change my bedding as I soaked it ALL last night. Right now I’m sitting in bed on top of a blanket.
They keep asking if I have pain when urinating: nope. Does my abdomen hurt: only where they placed the stent. I know EXACTLY where they placed the stent, even a month later. My urine is very dark and it STINKS! So I was worried there’s a problem with the stent, but I don’t itch and my total bili is still 1.4. So I don’t even have a guess.
I’ve never been NED in all this time, but basically I’ve felt much healthier than my docs have said I was (except for chemo!). In the last few months, I’ve actually felt like a person with cancer. I feel this need to get my affairs in order. Just in case. Stazi is my first priority. I don’t think it’s fair to leave her alone like I’ve been doing. My neighbors feed her, but it’s not the same.
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