Back pain – Lymph connected
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- This topic has 4 replies, 5 voices, and was last updated 8 years, 11 months ago by karend.
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January 24, 2016 at 6:02 pm #91312karendSpectator
Hello Tony,
I am so sorry to hear that your wife is experiencing pain such as you described. I will ask you just a few questions about her pain, and will also suggest that you keep in close contact with her oncologist or a palliative care physician as they are skilled in cancer pain control.
In the U.S. we ask individuals to rate their pain on a 0-10 scale. 0 is no pain, and 10 is the worst pain imaginable. How would she score herself on this scale? Is her pain interfering with her regular daily activities? Is she experiencing any new loss of sensation, numbness or tingling in her feet/toes/legs? Is she having bowel or bladder control issues that are new, or loss of balance?
Has she taken any opioids like morphine before? Physicians generally follow an analgesic ladder to treat pain. She could ask the oncologist if taking an NSAID such as ibuprofen would be alright, or perhaps Tylenol (or Paracetamol in Europe) if her liver functions are fine. If her pain level is anywhere above a 4-5 on that 0-10 scale though, she should seek assistance from the physician to prescribe a short acting opioid. It is best to treat her pain earlier rather than later. It is much more difficult to control pain when it has become severe, and as research has shown, early pain control will decrease the occurrence of nerve sprouting and further increased pain episodes.
I hope this will help you both! Increasing levels of pain significantly impacts a persons quality of life, so please do not hesitate to insist on aggressive pain management from her providers.
Karen, RN, CHPN
January 24, 2016 at 5:39 am #91311marionsModeratorIn addition to others chiming in, this posting by Karen, nursing advisory committee, may be of help to you:
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=13717as well as the archived postings in our “pain” thread:
http://www.cholangiocarcinoma.org/punbb/viewforum.php?id=15Hoping for others to chime in real soon.
Hugs,
MarionJanuary 24, 2016 at 4:13 am #91310sandie-in-franceMemberHi Tony,
I too have lymph node involvement and due to the fact they are close to my aorta, treatment is not really an option and I have opted to take the quality of life course. In the past few weeks I have had uncomfortable dull aches in my lower back and across my front between my hips. I have been taking paraceutomol, but in the last couple of days the pain has worsened and I now cannot lie on my back. I too do not want yo start on morphine but realise that I am heading in that direction. I think when the time comes to start morphine, it will be another quality of life decision. I appreciate this answer won’t offer you much help.
I wish you and your wife the best.
Thinking of you
SandieJanuary 21, 2016 at 3:27 pm #91309lainySpectatorHello, Tony! I don’t know much about the l lymph nodes but I know pain. Your wife can start with a small dosage of Morphine to take the edge off the pain. When pain begins it needs to be caught early or it can go out of control eventually and be harder to calm down. Also, when anyone is having pain it draws out your energy for fighting what is going on. We all need our energy to help us stay afloat. As always sending your wife the best wishes and prayers. Tony, also be kind to yourself!
January 21, 2016 at 12:43 pm #12067leedsukSpectatorMt wife has started to suffer with back pain in her lower lumber region, moving around to her groin.
Her oncologist has confirmed today that it’s as a result of the cancer in her lymph system. She has been offered morphine but is reluctant to take it so soon. (She was diagnosed with stage 3 on the 11th November 15.
Do any other members have experience of this dis-comfort? I would be interested to know your thoughts and comments
Thank you
Tony -
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