February 14, 2009 at 4:19 pm #26232jeffgMember
Tom …. All I can do is echo Pam and Darla. This web site has been a God send for me. Tremendous support from everyone. This relentless disease is so unfair all the way around. Even though I’m currently on at home hospice and loosing weight almost daily, I feel at peace and have faith God will be there to support and guide my family and myself. My thoughts and prayers are with you and your family all the way!
Jeff G.February 14, 2009 at 1:55 pm #26231darlaParticipant
I too am so sorry that you are going through this, especially as you are so young. As Pam said, come here anytime you need to talk. Everyone on this site is so helpful & supportive.
I will be hoping for the best for you and will keep you & your family in my thoughts & prayers.
DarlaFebruary 14, 2009 at 1:39 pm #26230cherbourgParticipant
My heart breaks for you. You are so young to have to deal with this monster of a disease.
Your family will be a great source of help for you. Be sure that they get all of the facts – believe me it’s better to know and prepare than to be “blind-sided” by the unexpected or unknown. That said only God knows the path and timing of our lives.
I take great comfort in what my son told me when my Mom was diagnosed. (He will be 28 on Monday) I use his words in my signature line and I believe they are a wonderful way to combat living with this disease.
Always feel free to come here and vent. We are always here for you and your family.
I will be praying for you and your family.
Hugs to all of you,
PamFebruary 14, 2009 at 11:21 am #1999sambamanMember
So I went to see my consultant yesterday to have a check up. I had developed a couple of lumps on my chest, forehead and back of my head in the last couple of weeks, along with a build up of some sort at my resection scar, near my belly button. She examined me and and confirmed my worst fears that the lump near the scar was tumour-related, and that if confirmed, it would be incurable.
I am due to have a CT scan in two weeks where this will be confirmed but I feel like my world has fallen apart. After going through the surgery in November I thought I would have more time than this before it returned. I do not have any sort of timescales as we need to see the extent of the spread but this will come from the scan.
I am going to have Cisplatin added to my chemo regime from Tuesday (currently I am on Gemcitabine only) and will have treatment two weeks on, one week off, which will hopefully control the spread. I will search these forums for info on Cisplatin but any info on side effects would be helpful.
I am just in a state of shock at the moment, at a loss as to what to say to my family, who obviously are suffering too. I have started thinking about everything I am going to miss and never going to have in the future. i just need an outlet for this.
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