Discussion Board Forums Introductions! Brother diagnosed

Viewing 15 posts - 1 through 15 (of 19 total)
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  • #33932
    gavin
    Moderator

    Hi Bean,

    I will keep my fingers crossed for your brother and hope that the treatment works well for him.

    I wish you and all your family the best for the new year.

    Gavin

    #33931
    lainy
    Participant

    Sounds good. Wishing you the best in 2010!

    #33930
    bean1969
    Participant

    My brother is starting chemo: cisplatin (Platinol) and gemcitabine (Gemzar).
    It seems like this is a very common course of tx from what I have been reading.
    Also it seems like some ppl have minimal side effects while others feel very “icky” so I guess we dont know what to expect.
    He and his wife trust Dr. Bruce Feinberg of Georgia Cancer Specialists very much and this seems to be the best way to go. Day by day, as a recovering alcoholic I have said this a lot but today it means so much more.
    Hope you all have a good night tonight (New Years Eve) in whatever situation you are in.

    #33929
    marions
    Moderator

    Bean….your brother might also want to ask ask about all treatment options including, some of the different forms of radiation.
    I am sending all my best wishes and am looking forward to hearing from you after your brother’s Tuesday visit.
    Marion

    #33928
    lulu07
    Participant

    Bean

    You have probably found the best place to be at this website. I was diagnosed with cc october this year 5 days before my sons wedding. I have done much research on the web really nothing compares to the information that you will receive here. The people are wonderful, sharing I have read some miraculous stories. Posts on this site give me hope and determination to beat this everyday and I will not stop. My cc is presumed stage IV. I’am going for a second opinion. My thoughts and prayers are with your brother,you and your whole family.

    #33927
    saracita
    Member

    FYI

    There are several members of this site being treated in Atlanta. A woman named Suzanne and Wardell Castle’s wife… your brother may like their contact info as he goes about making treatment decisions.

    Their handle names are : gtm2009 (Wardell) and suzannegm. I believe both have gone with Emory’s cancer center.

    I wish your brother and everyone in your family the very best,
    Sarah

    #33926
    bean1969
    Participant

    His diagnosis is “malignant neoplasm of extrahepatic bile ducts” with an
    additional diagnosis of “malignant neoplasm of liver not specified as
    primary or secondary.”

    We don’t know the stage, but it is advanced. We also don’t know if it is
    in the lymph nodes.

    I will have more info on Tues.

    #33925
    lainy
    Participant

    Not unheard of. But unusual. This CC is so different in so many ways for so many that about the one thing we know for sure is that we know not much!!! Teddy was 73 when he started. Your brother has age on his side. We have family on our site where there are survivors after being told nothing could be done. We do NOT listen to statistics because in reality we just don’t fit. Do you know exactly what his DX was? Where is the location? How large? Why they said no surgery? We can relate our experiences to you but that does not mean your brother will go through the same things. It’s really hard to give you advise not having enough information on what the doctors said outside of no surgery. If you can find out some more info that would be helpful.

    #33924
    bean1969
    Participant

    Are you saying 4 yrs is unheard of?

    #33923
    lainy
    Participant

    Absolutely Prayer works and that is why Teddy is a Miracle Man! He survived an aborted Whipple, an 8 Hour Whipple, a double ecoli infection, a hole at the resection, 2 blood infections, a return of CC a year ago and now it has returned again but is shrinking all on it’s own. He is 77 now and all of this is a Miracle. Every time he meets a new doctor and says he is a 4 year survivor of CC, the doctor says, you should not even be here! No one tells this old Sicilian he should not be here! TEddy believes in all things powerful. So, he has sung in our Jewish choir for 13 years and on Sunday goes to Mass to ask forgiveness!! :):):) Everyone needs to have faith, courage, hope and attitude.

    #33922
    lisa
    Participant

    Hi Bean,
    I’ve had Xeloda, Gemzar, some other platin based, and am currently on
    Epirubicin/cisplatin/FU-5.

    Nutrition: LOTS OF CHOCOLATE :)

    Actually, lots of protein, fresh fruits & veggies. I personally am not on supplements, but a lot of people are and say that they help.

    I have had tons of people praying for me, and I am here to tell you that prayer works!

    #33921
    bean1969
    Participant

    Lisa,
    Please tell me what type of tx you are having and any nutritional advice.
    I also see the power of prayer is very important to you. :)

    #33920
    lalupes
    Participant

    My very best wishes to you, your brother & family, too, Bean. Welcome to this wonderful site.

    Julia

    #33919
    gavin
    Moderator

    Hi Bean,

    Welcome to the site, although I am sorry that you have to be here. This site and the people here are great and you will get a ton of support and help. My dads CC was also inoperable from diagnosis and he had the stent fitted also.

    I know what you mean about denial and anger, we have all been there. And Lainy is right when she talks about starting to fight back and I’m sure that you will also do that.

    I hope you will keep coming back. Ask loads of questions and you will get a ton of support here.

    My best wishes to you and your family.

    Gavin

    #33918
    lisa
    Participant

    Bean, don’t give up hope! Many of us younger patients have lived long past any expectations. I was diagnosed 8/2007. My cancer is inoperable as well, and I have mets to the lungs, but I’m still here, alive, kicking, and enjoying my life. Pallitive care really can help prolong your brother’s life. It has mine. Please come here often to check in. We are all on your side!

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