Bummed
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Duke….that just sucks. I guess I see their reasoning….but it would have been nice to know that upfront. Yeah…..big choice….diarrrhea or neuropathy. That local onc also just seems like they don’t want to bother with learning anything more……..just use what they learned in med school and slide eventually into retirement on that. Good grief.
I know it’s quite a ways…and I don’t know what the requirements are…but what about the trial at MD Anderson that Patty Stoltz Cockeran is doing (and some others)? Do you qualify for that?
Julie T.
Aw, Dukster, so sorry to read your post. Some choice, the big D or the big N! What kind of choice is that?? Is another opinion a possibility? Man, they are really making you work for this one. My thoughts are with you as usual and I know you will come up with something.
Got a call from Dr. Sohal. My platelets are still too low. They failed to mention two things about the trial. You only get one retest, so I can’t go back next week for another blood test. Second is that the platelet count requirement is for the entire trial. If my platelets would ever get below 100,000 during the trial I would be dropped. So, I suggest you monitor you platelets and if they start trending towards 100,000 you should talk with your onc about the advantages and disadvantages about getting into a trial soon while your platelets are still above 100,000.
Dr. Sohal has two alternatives: irinotecan or taxanes. The first is supposed to give me diarrhea and the second increased neuropathy. He thinks the local clinic should be able to administer either. But my old onc said she had nothing else to administer. They need to talk.
Duke
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