Camp LeJeune Water Contamination
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Kathy,
Thank you for the information. Please pass on any further information that you feel will be helpful to others. I am so happy it has taken some burden off of you financially. All my best, MelindaWe have progressed through the VA process for the Camp LeJeune water contamination. My husband was given a 100% rating due to this cancer. Liver cancer is one of the 8 presumptive conditions that are linked to the contaminated water and the cholangiocarcinoma is considered liver cancer by the VA. All medical care will be covered by the VA, though he does not have to have care at a VA hospital since they don’t have experts in cholangiocarcinoma. They will pay for his treatment at a medical center with experts (so we’re expecting they’ll pay Johns Hopkins). Considering how rare cholangiocarcinoma is, I’m not sure how many other Marine vets are affected by this, but I thought I’d let others know in case. This will be a BIG help to use financially as we continue this path of healing.
I’ve not had a chance to scan in and post the official VA materials, but I’ll try to do that soon.
Thank you
Kgroft…..Perfect. Obtaining a second opinion from a center treating a high volume of cholangiocarcinoma patients assures you that the treatment protocol is on target. Thanks also for sharing any type of VA news with us. We have much to learn from you.
Good luck with your appointment at MD Anderson.Hugs
MarionThank you for the welcome. My husband is still under the care of Dr. Zheng at Hopkins. Fortunately, we live an easy distance to this fantastic facility. We are considering pursuing a second opinion at MD Anderson as well.
When I hear from the VA, I’ll update everyone here. I will also look up hub’s paperwork from the VA regarding this issue. Apparently, chemicals leached into the water and it continued for over 20 years.
Thank you
Kathy…..welcome, happy you found us.
Historically, liver cancer (HCC) and intrahepatic CCA were grouped together. Extrahepatic CCA was grouped with gall bladder canceer. The foundation is working hard on trying to separate CCA from liver not only for statistically purposes, but also for the reason that both diseases are completely different from each other. As of today we have not been able to move this mountain, but some day we will achieve what we set out to do.
Unless we hear otherwise I must assume that the VA grouped liver and intaheptic together.
Would love to know more about LeJeune group and hope for someone familiar with this group come forward and help us out.
Again, glad you joing our special family
Hugs,
MarionKathy,
Welcome to our group. I’m sorry that you had reason to find us, but I am glad you did. We can be a good source of information and support for you and your husband.
I am sorry that your husband’s CC has recurred. Hopefully, it has been detected early and can be effectively treated with the 5FU. Is John Hopkins still involved in the follow up tests and 5FU? I hope so, as they have considerable expertise with this disease.
I am not familiar with the VA procedures, but I know we have members who are. Hopefully, they will chime in soon.
Again, welcome to our board.
Debbie
Good morning,
This is my first post, so if it’s on the incorrect board, please advise.
A little background: My husband was diagnosed with ICC in Oct. 2015. Liver resection of 11 x 12 cm tumor at Johns Hopkins Nov. 2015 (positive margins, lymph node and blood vessel involvement), followed by gemcis and radiation. Monitoring scans clear until latest scan May 2017 shows recurrence with multiple lesions up to 1.5 cm. 5FU chemo in progress.
While hubby was undergoing treatment, we received info in the mail about water contamination at the Marine base Camp LeJeune during the time my husband was training there in the early 80s. He had a physical at the local VA several months ago and we are awaiting word on whether his cancer is part of the approved list. Liver cancer is on the list, but CC is not specifically listed.
Finally, my questions: Is ICC categorized in the liver cancer family? Has anyone else been approved with CC in the LeJeune group? What was the outcome? For those who receive VA services, what does acceptance in the group actually provide my husband?
Thank you for reading this long post! I appreciate any comments.
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