Campaign for the Cure: Meet Patty, Our Clinical Trial Hero!
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- This topic has 4 replies, 5 voices, and was last updated 8 years, 4 months ago by marions.
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July 19, 2016 at 8:48 pm #92729marionsModerator
Shellie…..I don’t recall you mentioning, but molecular testing had to show a tumor with a FGFR genetic alteration.
Patty’s study: A Phase II, Single Arm Study of BGJ398 in patients with advanced cholangiocarcinoma is not open for accrual. In fact, it has discontinued. Current patients on this study will complete the trial.
https://clinicaltrials.gov/show/NCT02150967Novartis is conducting another study for solid tumors (not specifically advanced cholangiocarcinoma) but with same FGFR alteration:
https://clinicaltrials.gov/ct2/show/NCT02160041It is recruiting in a few States only:
Horizon Oncology Research, Inc.
Lafayette, Indiana, United States, 47905
Contact 765-446-5777
Principal Investigator: Wael HarbUnited States, New Mexico
New Mexico Cancer Care Alliance Oncology Dept Recruiting
Albuquerque, New Mexico, United States, 87106
Contact 505-925-0357
Principal Investigator: Melanie RoyceCarolina Oncology Specialists, PC Recruiting
Hickory, North Carolina, United States, 28602
Contact 828-324-9550
Principal Investigator: Richard OrlowskiNorthwest Cancer Specialists Northwest Cancer
Portland, Oregon, United States, 97210
Contact 360-449-6522
Principal Investigator: David A. SmithUnited States, Washington
Providence Regional Cancer Partnership Providence Reg. Cancer (2)
Everett, Washington, United States, 98201
Contact 425-297-5500
Principal Investigator: Jason LukasMultiCare Health System Institute for Research & Innovation MultiCare – Gig Harbor Recruiting
Tacoma, Washington, United States, 98405
Contact 253-530-8060
Principal Investigator: John A. KeechHugs,
MarionJuly 19, 2016 at 5:12 pm #92728lainySpectatorHi, Shellie, and it is so good to see you! I am thrilled you are looking in to BGJ398 in New York and hope it all gets approved! Great step to take. Got to have lots of HOPE and an abundance of strength. Miracles do happen here. Please keep us posted on the latest and I will pray for the greatest posts to come!
July 19, 2016 at 4:38 pm #92727shelliecMemberThis gives me so much HOPE! Love this article we are looking into the BGJ398 in New York hoping we get good results!
July 15, 2016 at 10:43 am #92726gavinModeratorThanks for posting this Kathi.
Go Patty. As Patty says at the end of the piece, never, ever stop believing!!
Gavin
July 14, 2016 at 3:28 pm #12611kathiwagnerSpectatorHello! My name is Patty Corcoran, and I am 51 years old. In late February 2011, I was diagnosed with intra-hepatic cholangiocarcinoma. Since then, I have received numerous chemotherapy medications, undergone three rounds of radiation, and even had a 15 month break from all treatment because I was doing so well.
I have participated in two clinical trials, including the one I am on currently. In March 2015, I enrolled in a Phase II trial for the Novartis BGJ398 at MD Anderson. I experienced few ill effects, aside from diet restrictions and losing a few toenails, and the drug kept my cancer stable for about eight months.
Read more of Patty’s story on our website:
http://cholangiocarcinoma.org/campaign-for-the-cure-2016/
To contribute to the Campaign for the Cure today, visit: http://cholangiocarcinoma.org/c4c-form
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