Cancer Moonshot, patients are actively engaged in their research study

The Blue Panel Advisory Board to the Moonshot initiative is developing plans for active engagement. No longer should patients be denied access to the data gathered while participating in a clinical research study, nor should they be denied personal input as well as study outcome results.

Establish a network for direct patient involvement
http://www.cancer.gov/research/key-initiatives/moonshot-cancer-initiative/blue-ribbon-panel/brp-patient-network-video