Change in treatment
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sduggins,
I was in Greensboro for several days seeing my Dad. I’ll be thinking about you guys on Wednesday.
Dr. Morse is really good. Please say hello to him. My Mom’s name was Helen Davis.
Hugs,
Pam RicePam,
Thank you. Sorry for the delay in responding, but we just returned from a week at the beach. We are seeing Dr. Michael Morse on Wednesday so maybe he will have somthing else for Roger to try. He is very tired since we we returned but I think that is due to his trying to keep up with all my family at the beach. I am praying for a miracle.Hi sduggins,
Here is a link you might want to check:
http://www.nexavar.com/scripts/pages/en/index.php
Nexavar is Sorafenib. The drug is really designated for Hepatocellular cancer but was used by the Doctors at Duke for my Mom’s CC.
The main side effects are hand and feet problems. That said my Mom did very well with this drug. My Mom’s doctor at Dr. was Dr. Michael Morse.
During the course of Mom’s illness she used 4 different chemo drugs. Oxyliplatin, Gemcitibine, Nexavar and Xeloda. The only side effect she experienced was cold neuropathy.
Hope this helps.
Hugs,
PamGood thing to go to Duke. There are a couple of drug trials going on there that you might be able to take part in.
There have been several people on Sorafenib….try entering it as a key word search to bring up some posts. I was thinking about bringing up this treatment with my doctor next visit.
I havent heard of Nexafa so cant comment there.
Best of luck at Duke.
Kris
We met with the doctors today to review the results from the CT Scan taken on Monday. The news was not the best. Roger has 3 additional tumors that were on his last scan and have grown since the last scan 9 weeks ago. His major tumor only grew a little. We are going to meet with a Doctor at Duke on July 7th to see if they have anything new and if not our Doctor here said we could try Nexafa. It has the same side affects as Xeloda but with the potential of a Stroke or Heart Attack. Has anyone tried Nexafa or Sorafenib? If so could you share your experience? We feel very blessed that the Gemzar and Xeloda helped for 17 months but would like to have many many more.
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