Chemo pump

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  • #51705
    jathy1125
    Spectator

    Hi-Lily, I had no immediate side effects from 5FU. I did mine with radiation, so about a week after finishing both treatments, I became so exhausted. My exhaustion just meant a lot of “recliner time”!!
    Lots of prayers-Cathy

    #51704
    lulu07
    Spectator

    Lily…I also received Irinotecan and Leucovorin along with Oxaliplatin the 5FU and one other…which I don’t remember the name of now. They were administered over a 2 day period and then I would have a week off, so my chemo was basically 4 days a month for 6 months. I really did not have any side effects although my WBC did start to go down after about 2 and a half months in, I injected myself with Neupogen 2 days in a row after chemo which helped to increace my WBC so I would be ready for chemo again. I was given steroids on both days of my chemo and developed a voracious appetite so I had no problem with weight only that I put on quite a bit. I did not lose any of my hair but really I was ready for it and thought if that’s the least that can happen so be it. One plus was that my skin became very soft and smooth I have no idea if this was from the chemo but I tend to think it was…my best to your mother-in-law she is a lucky lady to have you in her corner…Nancy

    #51703
    lilyamongthorns
    Spectator

    Thank you all for your responses. Diane will have an 5FU pump and then get bi weekly treatments of Irinotecan and Leucovorin – I believe the 2nd too are the right names but I will double check.

    I will use the search function to see if anyone else has been on those chemos – but if you want to tell me any side effects you had with 5FU that would be helpful. My mother in law has been tired, lost a lot of weight, and had breathing difficulties associated with the Gem / Cis, but hasn’t lost her hair. Are any of the new chemos I listed more likely to make her lose her hair?

    Thanks again!

    #51702
    lulu07
    Spectator

    Hi Lily…I also had 5FU delivered through an infusion pump…I would go to oncs office for chemo on Monday be sent home with infusion pump overnight..back to his office on Tuesday for additional chemo, by the time I was finished with the other meds the pump would be done. I have a double port so both could be given at once. I really had no problem with the pump other then it was odd to be sleeping with tubes and what is like a small shoulder bag. One warning however….cats love the tubing from the pump it sways..so being the curious creatures they are they want to catch it. One of my cats did and put a hole in the tubing! The pumps come with emergency phone numbers…they got back to me right away and explained to me how to shut the pump down…which meant I was longer at my oncs office the next day. They also told me that was the #1 reason they received phone calls…thoughts and prayers Nancy

    #51701
    jathy1125
    Spectator

    Hi Lily I am a CC survivor and part of my treatment was the 5FU Chemo pump. The pump was connected through my port. You have a bag with pump which is either shoulder or fanny pack. It was inconvient at first but really no big deal, you get use to it. I had it for 6 weeks and the nurse changed the bag once a week. I had it during holidays andit really never showed up in the pictiures.
    Lots of prayers-Cathy

    #51700
    kathyb
    Member

    I had a PIIC line during my first treatment of 24/7 chemo and radiation. The line was in my left arm probably about 1/3rd of the way down between the elbow and shoulder. After it was inserted an x-ray was taken to make sure the line was not too close to my heart. Mine did have to be pulled back a tiny bit.
    I carried a small blue bag/purse with a shoulder strap that contained the chemo and pump. I don’t believe it was much bigger than 4×6.
    Of course I did not like this as I just don’t like tubes, but it did not hurt after it was in. It was more of an inconvenience (especially at night because I like to sleep on my stomach and felt I had to lay on my back) and a constant reminder that I had cancer.

    I’m sorry Diane did not get better news.

    God bless.
    Kathy

    Did Diane have a port? If so, maybe they just hook it up to that. I don’t know.

    #51699
    gavin
    Moderator

    Hi Lily,

    That would be great if you could get back to us when you know more about the new type of chemo that your mother in law is going to go on. I can’t share any personal experiences with my dad here as he never had chemo, but here is a link on chemo pumps that may be of use to you.

    http://cancerhelp.cancerresearchuk.org/about-cancer/treatment/chemotherapy/having/chemotherapy-pumps

    We also have the chemo board here where members have shared many posts about their experiences with chemo, and also the search function may be of use to you as well. I am sure that others will also be along soon to share their experiences with chemo and chemo pumps with you soon.

    Best wishes,

    Gavin

    #5446
    lilyamongthorns
    Spectator

    My mother in law was told they will be switching her chemo due to lesions on her lungs that have come back. She was previously on Gem/Cis that she recieved once a week every other week in the hospital. I don’t have the names of the new chemo(s) she will be on yet, but I do know they said she would be getting some chemo in office and then going home with a pump.

    Can anyone tell me anything about the pump? Any “heads-up” type of info from people who have had it?

    She has been on the same chemo for 8 months, and then they tried a themosphere radiation treatment. The scans (PET and CT) came back with no change to her liver / bile duct tumors and with lesions returning on her lungs where they had previously disappeared from.

    Any info is helpful! I will update with the names of her new chemo when I have it.

    Thanks so much!

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