Chemo Resistant
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Hi Eric,
You are not alone! You have all of us on this site and we will help to support and encourage you through this time. Just stay in touch and keep us updated on your day to day progress. We are your family and your friends and will pray with you and for you. Stay the course and keep the faith Eric. We’re with you in spirit every step of the way.
Best wishes and prayers.
Hi Peony I am also have cc, I had a liver recection and a chemo pill in jan 08,and now am having problems again.Your husband is so lucky to have you for helping inspire him to continue,I am all alone most the time and having to decide the same treatment within the next three weeks.thursday I have a pet scan and see if the cells have multiplied or stayed the same,at the same time I have doctors 2nd opinion going on,problems digesting food.I will keep you and your husband in my prayers and everybody else also,make the best of the hollidays and 1 day at a time and the lord is helping me along with all of you,I just cant read or type much anymore from Eric in Ohio
Hi Nancy,
Thank you for sharing your story. I know of Dr. Schwartz. He was also recommended to us. He has a great reputation.
Keep fighting. Your in my thoughts and prayers. All of you are in my thoughts and prayers.Best.
Hi Lily,
We do seem to be on the same path. Good luck with your mothers PET scan next week. Please update us with the outcome. So far my hub is doing OK. Some side effects and a little pain but we are hoping the tumors have shrunk. He is only 47. Although a diagnosis of cancer at any age is devastating. Yes, lets stay in touch . It’s great to have the support.
Best to you and your family.
Hi Kim,
Yes, we have “spoken” before. We have not contacted Dr. Kato yet . We decided to wait until the PET scan in January. We’re hoping that the tumors are shrinking and want to give this a chance for now. Thanks for your offer
of contact, I may just take you up on that !!!I received gem/cis too without any response but now it is thought that my CC is so slow growing that it would not respond to chemo because chemo works on rapidly dividing cells which mine are not. A PET scan did not show the lymph nodes in my
abdomen (biopsy of same were definitely adenocarcinoma) and that relies on rapid uptake of glucose so those are not highly active. I have had a chemoablation of the liver tumor with good response and almost no side effects. That was done July 6th and I have had no further growth of the lymph nodes and no treatment. I am having sequential CTs only at the moment. Perhaps there is a reason for the lack of response to chemo. My best wishes for you to find a doctor who will provide you with the hope you need to keep up the fight.Peony- I’am also an almost 1 year CC survivor I was told by a very reputable NY Hospital for cancer that I was not a candidate for surgery. I had been stented internally and it took 3 times before thay were able to accomplish this. I will be always grateful to the Dr. who was able to stent me. I was then told maybe the cancer had spread to my stomach so off I went for a laparoscopy came back negative. After that I was told last step before surgery was a PET scan I had that right before Thanksgiving of last year the news was not good they told me cancer had spread to my chest – chemo only I would not be re-evaluated for surgery. This did not sit well with me I was 51 and in wonderful health until my diagnosis. I reached out on this website and was answered by a man named Marc whose mother had the same disease. He saved my life he gave me the name of Dr. Myron Schwartz at Mt. Sinai Hospital in NY. I called his office they gave me an appt within 3 days! He reviewed my scans and told me he didn’t think the cancer had spread would I be willing to have a CT scan. He thought the uptake on PET was from stenting procedures. He was absolutely right I had surgery Jan. 19 2010 I had no post-op complications. Although he is affiliated with Mt Sinai he recommended I receive my chemotherapy from Bruckner Oncology 170 William St. 4B New York, NY 212-228-4800 they were wonderful and have much experience with CC. I also live in NJ in Phillipsburg so sometime the trip would take an hour and a half or up to 2 and a half hours all in all it was worth every minute. I wish u and your husband the best. Explore every avenue. I will keep u both in my thoughts and prayers.
NancyPeony- I am a cc survivor. I was having a great summer in July 2008. July 30,2008 was last my “normal day”. July 31, 2008 I was told 6-8 months to live. How do you move on from that, you don’t at first. I found this site a month or so after being diagnosed and instead of embracing it and finding cammedrie, I wanted no part of it. I guess at the time it was a major case of denial and reality. I now know I should have utilized it more but I was to busy surving. I am on it a lot now because I want to give hope. Kim is right we do have possibilities, I am a live due two liver transplants. Contact Kims doctor, the Mayo-Clinic or Barnes-Jewish (St. Louis, Mo). If my doctor had not been on vacation, he would have sent me to a local gastronologist who wouldn’t know what he was looking at. He would have taken a wait and see approach I wouldn’t be writing now. Start at the top, and get the best info out there. Keep lots of hope and prayers-Cathy
Welcome! My mother was diagnosed in OCt w/ CC and is on the same chemo as your husband. She also is having a PET scan to test teh effectiveness of the chemo after her 3 round of chemo. Her scan is scheduled for next week. It seems they are on similar paths. How old is your husband? I know it is hard being the caregiver, if you need to talk let me know! we can e-mail back and forth and support each other!
god bless
lily
Hi Peony, I believe we have “spoken” before, so I apologize if I say anything that seems redundant. Your husband’s case hits home for me, as I too was on the exact treatment. Your husband is also the same age as I am. Unfortunately, Gemzar & Cisplatin did not work for me, as I believe I explained to you previously. I was wondering if you have attempted to contact Dr. Kato in NY. He will review your husband’s scans without having to meet him. If he feels he can perform his magic, he will ask you to come to his office. I can certainly relate to your husband’s frustration, fear, disgust, depression, etc. I also went from being a healthy woman attending nursing school, taking care of patients one day to lying in a hospital bed, now as a patient, the next. This disease will carry many emotions, but giving up should not be an option. The unfortunate reality is that this disease is a very difficult one to cure, but it is not impossible. As long as the possibility exists, you must never give up until you find it. If I can help you in any way, please let me know. My prayers are coming your way. This disease can be conquered, so together with all of us on here, let’s fight with every ounce of power we have. I’m not ready to give up & I sure hope your husband isn’t either. Good luck & please keep us posted. Hugs!!!!
Kim
P.S. If you would ever like to talk, please email me at kcirucci@msn.com & I will give you my phone #. Sometimes you can’t explain things in writing as you could via phone.
Hi Peony,
I can understand why your husband doesn’t want to post here, but I am glad that you are here and will be asking questions and doing the research. Information is power and the more information you have the better informed you will be, so please, no apologies are needed from you at all for asking questions, ask away and as I said, we will help if we can. And also, you don’t have to apologise at all for rambling. We know how you feel and we know what you are going through right now. So go on, ramble on, vent away and we will always all be here for you no matter what.
My best wishes to you and your husband,
Gavin
Thank you all for your kind words of support. I’ve been reading the posts for quite awhile and am so happy to have found this website. My husband won’t join and doesn’t want to read anything – which is so unlike him. But I do understand. So I’ll be asking the questions and doing the research for him (and me). We are so devastated by this diagnosis. It seems like 1 day he was fine and healthy and working and the next he is ill and getting chemo. He is so depressed and didn’t even want to fight the battle but he is doing it for me. Now he feels like he can beat this and I’m so scared of a setback and what it might do to him, emotionally. I say 1 day at a time and he says he can’t not think of the future or no future.
Sorry for rambling, I think I need to find a local support group as well otherwise I will be on here writing everyday for hours at a time.
Thanks for listening.Dear Peony – You have joined a new family, the CC family, and we will be here to listen, care, share, and walk with you through this difficult process. We all have our ups and downs and we share them here where people REALLY understand what we are going through. Welcome, post often and share with people who care. Blessings, Susan
Hi Peony,
Welcome to the site. Sorry that you had to find us all and I am sorry to hear about your husband, but I am glad that you have joined us all here as you will get a load of support from everyone here. And I am glad to hear that your husbands pain is less.
I hope that you will keep coming back here and please feel free to ask a ton of questions if you have them and we will all do what we can to help in answering them.
My best wishes to you and your husband,
Gavin
Hello Peony and welcome to our wonderful family. I live in Arizona but I just know you are going to get some referrals here and we do have a listing of physicians as Marion stated which you will find very helpful. None of us know what to expect when it comes to CC so you are not alone, we are all right here with you. Please keep us psoted on your husband and we are glad you found us.
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