August 9, 2010 at 5:31 pm #24427marionsModerator
Hi dhaka and welcome to our site. We would love to hear more about your.
MarionJanuary 9, 2009 at 7:51 am #24426marionsModerator
QuanYin….welcome to our very special group. Until others have a chance to answer you it might be helpful to use the search function. There are several postings re: radioembolization which are quite informative. Good luck and please, stay in touch.
MarionJanuary 9, 2009 at 6:44 am #24425quanyinMember
Please keep us posted Walk.
Anyone know what is the qualification for candidate of radioembolization?January 6, 2009 at 11:50 pm #24424walkMember
My father had no symptoms other than weight loss. He had a C/E on Dec 29th and has fared very well. He will do it again on January 19th. We won’t know until he gets another MRI if it is working, but so far at least (fingers crossed) it has done no harm.
FWIW, we sought three opinions and C/E was what all three said. We may pursue R/E with the third doctor if the chemo doesn’t work.
Good luck with your decision and treatment!January 6, 2009 at 11:37 pm #24423
Thanks for everyone’s input. Quite honestly I’m scared to pieces of both chemoembo and radioembo. Chemoembo REALLY scares me. I finally today received a response from my oncologist (at Emory in Atlanta) regarding getting some guidance from him on helping me make a decision. He told me that my scans were today reviewed by the tumor board and that chemoembo is recommended, but either way I go I need to do something soon.
I’m so afraid that either one of these procedures will upset the delicate balance I have going on, I have no pain or other major side effects except from regular chemotherapy.
I’m afraid I’ll start going downhill if I do this. But I guess I need to do something. Someone tell me what to do.December 20, 2008 at 5:57 am #24422violarobMember
Howdy everyone: I had chemoembolization (with doxorubicin) performed as first-line treatment after my diagnosis. Some people sail right through this procedure with few problems, but for me it was VERY painful. Also, I did not get much benefit from the treatment. During the chemoembolization, they did a hepatic arteriogram, which is standard practice so they can see exactly where to inject the embolizing material. While viewing the arteriogram, they could see for the first time several other lesions not diagnosed previously. These additional lesions could not be treated with chemoembolization. Long story short, they could only treat one tumor out of the 7 visualized on the arteriogram. (This episode was followed by another loooong story, which I will post elsewhere on this site. I eventually received appropriate successful treatment, and am now cancer-free for the time being).
According to info from my oncologist and my own research, chemoembolization is only effective for treating 1 or 2 tumors, and they should be less than 5 cm in diameter. In addition, only 50% of those treated will have a positive effect. Rarely are the tumors destroyed; usually, they are either stabilized or cause some shrinkage. It is considered palliative, not curative.
Violarob in TexasDecember 4, 2008 at 2:32 am #24421colleenParticipant
Fred wasn’t a candidate for the radioembolization, thats why we went witth the chemoembolization. His doctor Dr. J.F. Geschwind at Johns Hopkins is one of the world leaders for this treatment, so it wasn’t a hard decision for us. Fred didn’t present with the typical symptoms either and by the time the tumor was discovered it was almost 10cm x 10cm and wrapped around all the major blood vessles etc. in his liver. Hopkins told us they considered the embolization treatments a success if it killed 50 – 75% of the tumor and or shrunk the tumor. We had just about 50% death of the tumor and Fred lived 10 days shy of 18 months from diagnosis, so we considered the treatment a success and felt that without it he wouldn’t have made it so long. As Jeff said, I think you just have to go with your gut, jump in feet frist, try, try and try again.
ColleenDecember 3, 2008 at 2:17 pm #24420walkMember
Suzanne, I had a long conversation yesterday with a nurse at Wake Oncology, one of the best sir-spheres (radioembolization) practices. My conclusion (which is by no means professional) is that radio is the best way to go. For us, some of the questions are logistics because my dad is 2 hours form their practice; however the side effects of the sir-spheres are far less than the chemo, at least as I understand it. While there are no guarnatess, it does seem that sir-spheres treatment has better results. The other big question is what will your insurance cover.
Good luck!December 3, 2008 at 2:07 pm #24419
Jeff – again amazing words of wisdom. Thank you. I’m trying to keep a “fight” attitude. I just hope I’m being given the opportunity to get as aggressive as possible.December 3, 2008 at 4:12 am #24418tiapattyMember
Here is a pretty good, though technical, overview of treatment options:
PattyDecember 2, 2008 at 11:54 pm #24417jeffgMember
Suzanne, Age 43 is when I was diagnosed. I turn 53 the first week of January. Count the years young lady and remember…… faith, love, laughter, and down right persistense. Listen to your body and go with your gut feelings my dear. When this CC gets mean you get mean right back. If you let it take control of your emotions, the stress will work against you. Yes it has finally caught up with me, but even being on home hospice, I’m still taking oral chemo for a take it to the limit one more time. Hospice kinda questioned me about this matter and I said, if you do your job of caring and comforting, what I’m doing won’t make their task any more difficult.
JeffDecember 2, 2008 at 2:25 pm #24416
Colleen – how did your husband decide on chemoembolization? The radiologist is telling me there is no statistical data showing which is more effective, chemoembolization or radioembolization. Because I am not presenting with typical CC symptoms, my case is even more unusual. Plus there is no way to know if either will work.
I’m really struggling to make this decision. Why can’t this be easier?November 25, 2008 at 7:46 pm #24407
Thank you all for your posts. Don’t know what I would without this website. I’m doing as much research as I can before turkey day.November 25, 2008 at 2:09 am #24415tiapattyMember
Maybe you have already seen it but here is a good article on radioembolization:
And here is an overview of different treatments:
PattyNovember 25, 2008 at 2:08 am #24414colleenParticipant
Suzanne – My husband Fred had 4 chemoemboliztion treatments done at Hopkins. The treatments killed about 50% of his tumor, but didn’t shrink it in size any and due to the location of the tumor he was never considered a candiate for surgery. The side effects really weren’t that bad, he was basically out of it for a couple of days, but then he was back to work with no problems. He did develop an liver abscess after the 4th treatment which is a rare side effect less than 4% from what we were told. I believe without these treatements he wouldn’t have made it as long as he did with this horrible disease. Unfortunately we lost our battle on September 16. If you would like more info or have anymore questions, feel free to email me.
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