Discussion Board Forums Announcements Cholangiocarcinoma Awareness Month

Viewing 15 posts - 1 through 15 (of 25 total)
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  • #31998
    sara
    Member
    Lainy wrote:
    Hi there Joyce. The letters went to Oprah twice, Ellen DeGeneres, CNN, Geraldo, Riley and Beck. Oh, also the Walter Payton Foundation and Helen Hunt. I also had an idea of getting in to the World Book of Records by having a day where volunteers all around our CC Globe would shave their heads on a certain day in support of CC. I know, I can get carried away. Or a “Remembrance Day” around the world picking a month to use as an awareness month. Remember I was people what month they liked. Just trying to get the ball rolling but I know sometimes these things can be daunting especially if one is not feeling well. Then my own problems started in as well and I let my brain rest on that part of it.

    LOL, Lainy! Shaving our heads? Hmmm…Maybe I would do it and send it Kris’ direction. Although, I doubt she’d want my hair. It’s rather damaged right now.

    If anyone has any suggestions on what to do this month, please let us know. We’re doing a soft launch this year just based on the timing aspect. However, we can make some things happen fairly quickly, so please let us know if you have any thoughts on what we could do to help raise awareness.

    #31997
    sara
    Member
    Cherbourg wrote:
    I invite everyone (and especially Kris) to North Carolina for BBQ. Lexington, NC is the barbeque capital of the world…lol

    Pam

    Those are fightin’ words, Pam! :) Actually, I love the pulled pork in North Carolina. If you are ever in Texas, please let me know. I’d love to have you over for some smoked brisket!

    #31996
    lainy
    Participant

    Hi there Joyce. The letters went to Oprah twice, Ellen DeGeneres, CNN, Geraldo, Riley and Beck. Oh, also the Walter Payton Foundation and Helen Hunt. I also had an idea of getting in to the World Book of Records by having a day where volunteers all around our CC Globe would shave their heads on a certain day in support of CC. I know, I can get carried away. Or a “Remembrance Day” around the world picking a month to use as an awareness month. Remember I was people what month they liked. Just trying to get the ball rolling but I know sometimes these things can be daunting especially if one is not feeling well. Then my own problems started in as well and I let my brain rest on that part of it.

    #31995
    jclegg
    Member

    I like February, and – I had a pulled pork sandwich for dinner last night! Delicious.

    Lainy – I’ve forgotten – did we ever send those letters on to Ellen, after you tried Oprah??

    Joyce

    #31994
    marions
    Moderator

    Thank you, Jolene for bringing awareness to your local cancer center. Your kindness of leaving the brochures will help someone else touched by this disease. How is your Mom doing?
    Best wishes,
    Marion

    #31993
    daddysgirl-2
    Member

    I like the idea of February as CC awareness month.
    Last week when I brought mom in to see the onc at our local cancer center, they remembered my dad was a patient there. They thought pancreatic cancer, but I reminded them it was cholangiocarcinoma. They replied, “that’s right. should’ve remembered, we don’t get many of that cancer.” I told them about this foundation, and left a few brochures with them. I hope that if/when they check in, they notice we have an awareness month, and read all the amazing stories left here.

    It only takes a spark to get a fire going…

    Jolene

    #31992
    marions
    Moderator

    Pam…I would love that. What a nice thought. I don’t think that I can make it for the BBQ however, some day there will be a conference for me to attend in your area. I can’t wait.
    Best,
    Marion

    #31991
    cherbourg
    Participant

    I invite everyone (and especially Kris) to North Carolina for BBQ. Lexington, NC is the barbeque capital of the world…lol

    Pam

    #31990
    gavin
    Moderator

    Hi Sara,

    I noticed that yesterday and it looks good indeed! My thanks to you, Rick and everyone else for all that you do.

    Best wishes,

    Gavin

    #31989
    darla
    Participant

    Sara,

    I noticed that. Looks great! So, is February going to be the “official” month?

    Darla

    #31988
    sara
    Member

    Rick has added a fun graphic for February.

    #31987
    darla
    Participant

    I think it is a sandwich piled high with tender shredded pork soak in BBQ Sauce. I’ll have some too! :)

    Darla

    #31986
    marions
    Moderator

    Gladly, but what is “pulled pork?”
    Marion

    #31985
    devoncat
    Participant

    Can someone have a pulled pork bbq fundraiser and send me a plate?

    Kris

    #31984
    lainy
    Participant

    Great idea Gavin! Then we have to see what they would want to do with all the letters.

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