Cholangiocarcinoma Awareness Month

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  • October 31, 2009 at 3:14 pm #31983
    gavin
    Moderator

    Perhaps new members to the site could do a letter and maybe those who have done a letter could do an update on what has happened, how life has been etc over the last year?

    Gavin

    October 23, 2009 at 11:25 pm #31982
    lainy
    Spectator

    I still have those 35 letters from a year ago that I tried to send out to talk shows. Perhaps we could add some new ones and do something with those. Just not sure what!!!

    October 23, 2009 at 9:33 pm #31981
    sara
    Member

    While the poll is drawing to a close, I thought I’d start asking for ideas for the Awareness month. I thought it would be nice if we did something every day of the month. Maybe a mix between press releases, events, interviews, etc.

    Any clever ideas?

    October 14, 2009 at 7:23 pm #31980
    lainy
    Spectator

    A woman can change her mind, is that not what we are known for? I vote for February 2011.

    October 14, 2009 at 6:53 pm #31979
    sara
    Member

    Kris – probably. I think we’re resolved that 2010 will be our year for experimenting with concept, with hopes that we’ll look polished by 2011.

    Ideally, I would like to map out something to do every day of the awareness month. Something amazing that the Colorectal Cancer Coalition does during their month is an advocacy day on Capitol Hill. We’re not ready to do that in 2010, but I think that would be a very important date for future awareness months. It doesn’t involve the international community as much, but we could organize similar “marches” in some of the global markets as well.

    October 14, 2009 at 6:44 pm #31978
    devoncat
    Spectator

    Sara,
    I wish I would have read before voting. Feb does sound good!
    But is it too soon to get something going for 2010?

    Kris

    October 14, 2009 at 6:19 pm #31977
    tanoland
    Member

    I voted for January…the month this disease took my sister from me.

    October 14, 2009 at 5:53 pm #31976
    sara
    Member

    Thanks for posting this, Rick!! I voted for February because:

    * February is the most unique month in the year, and CC is a unique cancer
    * There are only 4 other Awareness days listed in February
    * It works well with the heavy medical conference schedule in the spring.
    * It works well with the fundraising initiative that the Foundation is about to launch to support research grants, and co-host a bile duct cancer-specific medical conference.

    October 14, 2009 at 8:12 am #31975
    lalupes
    Spectator

    That’s great, Rick!! I see you’ve linked it to Facebook, too – I’ll poll my mates as well.

    Thanks
    Julia

    p.s. I’ve linked the poll to my Blog. I hope no one objects. (I’m not sure why anyone would but my sis & I suddenly got the jitters about treading on anyone’s toes.) If anyone wants me to remove the link – please say!!

    October 14, 2009 at 3:48 am #2762
    rick
    Keymaster

    We have a new poll up!

    cholangiocarcinoma.org :: poll

    Vote and discuss here! Thanks!

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