Hi Allison,
Welcome to the site. Sorry that you had to find us all and i’m sorry to hear about your mum. I came here after my dad was diagnosed and I know how you are feeling right now. And yes, you are so right in that more, much more in fact needs to be done with regards to research and awareness.
Should you wish to do something in conjunction with the CCF then this page may be of use and interest to you –
http://www.cholangiocarcinoma.org/fundraising.htm
Or maybe you would get more information or ideas if you called or emailed here (801) 999-0455 or fundraising@cholangiocarcinoma.org
I do hope that you keep coming back here Allison and tell us more about your mum. We are all here for you and please let us know how things go for you and your mum.
My best wishes to you and your mum,
Gavin