Clean Scan!!
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- This topic has 20 replies, 11 voices, and was last updated 14 years, 1 month ago by lulu07.
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November 21, 2010 at 11:48 pm #41211lulu07Spectator
Randi – Just know everything is going to be fine with your lab work! I totally understand the anxiety about this. I have told my family many times being off of chemo is like a double edged sword I’m so thankful I don’t have to have chemo anymore but, at the same time I’m wondering what’s going on in there? Agreed never second guess any of your decisions and as far as Lainy and everyone else on this website go all are inspirations. so much strength and hope on this site. I know u will be chiming in with more good news soon. Nancy
November 21, 2010 at 11:32 pm #41210slittle1127MemberI think this disease makes all of us – patients, caregivers, family members, spouses feel vulnerable. This is a 15 minute utube video, but well worth the time to watch. I hope it helps.
TEDxKC – Bren
November 21, 2010 at 7:11 pm #41209RandiSpectatorI am heading back to the oncologist for my 3 month follow up on Tuesday (Nov. 23). I have to say I am a little nervous. They are not going to do a scan this time, but I believe I will have a blood test. My markers have never high, so this will just be for liver function I suppose and miscellaneous stuff.
Dianne: Don’t second guess too much about not having had chemo. It was totally up to me whether I had it or not and I opted out of radiation (a decision which my doctors supported). Your doctors (especially your surgeon) know your specific situation and the Mayo is an awesome place with skilled medical staff…you were/are in good hands.
Like many on here, I have good days and bad emotionally. I think one thing I’ve learned along the way is that life is so unpredictable and fragile and we shouldn’t take it for granted (altho I am sure at times I do). I often wonder if I need to learn this lesson over and over again!! I think as checkup appointments approach I get more nervous and focus in on little aches and pains too much. I started weight training again and was sore and it freaked me out a bit.
Lainy: I read your positive and up lifting posts on here occasionally and YOU are an inspiration!
Thanx for all the kind words everyone. I’ll check back here after my followup appointment on Tuesday.
November 21, 2010 at 3:20 pm #41208lainySpectatorDearest Randi, you are truly a Poster girl for survivors. You are an inspiration to us all. Enjoy, enjoy, enjoy!
November 21, 2010 at 2:59 pm #41207lulu07SpectatorDiane-Wishing u only the best of news when u have your f/u CT scan. It is a day to day mental struggle with CC. Some days I don’t think about it at all and then as u said there r other days when it is the only thing u can think of! So good u were busy planning your daughters wedding after surgery always a happy and blessed event. I was diagnosed just 5 days before my son got married. I’m the yellow one in the wedding pics. lol Yes-NJ gets a bad rap and is the butt of alot of jokes but, I’ve been a Jersey Girl for all my 52 years and don’t plan on leaving anytime soon. It really is a beautiful state we have it all! Continued good health to u and as always my thoughts and prayers r with all on this site Nancy
November 21, 2010 at 1:26 pm #41206dianne-nSpectatorHi Randi,
I read with great interest your posts because you seem to be about 2 weeks ahead of me in diagnosis and surgery. My surgery for extrahepatic CC was at Mayo Clinic in MN on Jan. 5, 2010. My margins and lymph nodes were clear and my surgeon said it was not necessary to refer me to an oncologist – and now I’m kind regretting this decision. I have had 2 CT scans since the surgery (July and Oct. – when I had some sharp pains) and neither showed any sign of recurrence. At the advice of Lainy and others on this board I saw an oncologist a couple weeks ago who said he would have talked to me about adjuvant therapy in Jan., but would have let me decide if I wanted it or not. At this time it is not recommended. SOOOOOO….I go back to see my surgeon (who is the main doctor following my care) at Mayo in Jan. and am hoping for continued good news! For the first 8 months or so I think I was kind of in shock and really busy planning my daughter’s wedding so didn’t get too down about it all, but lately I’ve had some down days. I think the cruise with family is a GREAT idea!Nancy: My husband and I were just in Wanaque, NJ for a reception for our daughter’s wedding. Lovely area!
So wonderful to “talk” to others fighting this horrible illness!
Dianne
September 3, 2010 at 7:29 pm #41205linda-zSpectatorHello Randi,
You certainly have been through a lot. Since you kicked those other cancers, it certainly fits that you kick this one too! And the “third time’s a charm”.
How wonderful for you to be able to go on the cruise with your family. Best of luck to you. I’ll look for you on facebook.
Linda
August 31, 2010 at 9:53 pm #41204RandiSpectatoroh and thank you Katja and everyone for your kind sentiments.
August 31, 2010 at 9:49 pm #41203RandiSpectatorI am a 16 years survivor of breast cancer and an 11 year survivor of Thyroid cancer and a 9 months survivor of CC. Every day is a good one!
August 31, 2010 at 9:12 pm #41202katjaMemberRandi
I cannot believe this is your 3rd cancer – how much does one person have to deal with?
Here’s to your continued recovery and beating your third cancer.August 31, 2010 at 8:24 pm #41201RandiSpectatorThey were able to get clean margins and I had no lymph node involvement in the Whipple surgery (stage 2a) so chemo was adjuvant and totally my call to do or not do. I figured I might regret not doing it and I was told that Gemzar was well tolerated. I did 1x a week for 3 weeks and then 1 week off for 6 months. Just finished July 16th.
I didn’t get a port until half way thru when my veins were going away. I can only get pricks and pressures on my right side (I had breast cancer and had lymph nodes removed from my left side). I am getting the port out on Sept 22nd and I can’t wait! WIsh I had gotten the port sooner tho, cause my veins are pretty beat and NO I will not miss weekly blood draws!!
I see my surgeon for follow ups and he is the one who put in and will remove my port. My oncologist is the person following me mostly, however, I still stay in touch with a very caring GI doctor that first diagnosed me and my internist is wonderful as well.
I know what you mean about processing what has happened for the past 10 months, it’s a very ugly blur right now. Never thought I would be done with it and hopefully we are both done with it!
I went on a cruise 3 weeks after chemo was done with my family and extended family and it was the best decision I made throughout my treatment. It was relaxing and detaching and the only time I thought about CC was when I undressed and saw my scar (which is actually fading quite nicely) and my port.
I am also loving life. This is my third separate cancer (breast, thyroid, and CC) and I have had enough thank you.
If you are on facebook, go ahead and “friend me”… it’s Randi Barrell (I am the only one)
Take care,
-Randi-August 31, 2010 at 7:10 pm #41200lulu07SpectatorRandi
It certanily does seem that we r on the same path my tumor markers were never abnormal either! I just finished chemo on the 18th of August I tolerated it very well no problems really just a couple of hot flashes ut oh giving away my age. I was given 5 different chemo meds over a 2 day period I would go home with a pump on Mondays and it would be unhooked on Tuesday when I had my Oxaliplatin. Mondays I was given 3 differents meds. I have a double port so all meds went through there it is better then the veins. I will be seeing my oncologist once a month for the first three months then Ct scan with my surgeon if all is well I will not have to see either of them for 3 months which will be a blessing. I don’t know about u but I’m tired of being stuck for blood every week. Is your surgeon still active in your care? I really need to just sit back and take in all that has happened within the last 10 months but, for right know I’m just loving life.
Take care:
NancyAugust 31, 2010 at 2:47 pm #41199RandiSpectatorNancy,
Sounds like we are a similar path. The doc wants to hold off on CT scans for me because I’ve already had 4 this year and he is worried about radiation exposure. I’ll see him ever 3 months and blood work then too (but my markers were never high). He did say that usually the only way they would know if it came back was on scan, but given my circumstances he feels like waiting 6 months is not a bad option.
how are you recovering from chemo? I seem to get stronger each day and my intestinal problems have gone away. I had a lot of intestinal issues with chemo where it just shut them down, especially the last cycle or 2.
Glad to hear you are doing so well. I will keep you in my thoughts as well. This disease sucks and I feel lucky to have been diagnosed so early, but then can anyone who has gone thru what we have be called lucky
Take care and continued good health.
-Randi-August 31, 2010 at 12:17 pm #41198lulu07SpectatorRandi,
Terrific news! May u have many,many more clean Ct scans. I was diagnosed with intrahepatic CC in Oct 09 had surgery Jan 10 then 6 months adjuvant chemo. Last Ct scan in July was clean no sign of active disease as my surgeon put it. I will have my next scan in Oct my surgeon wants scans every 3 months for the first year. Best of luck to you and everyone who is battling this disease u are all in my thoughts and prayers daily.
Nancy
August 31, 2010 at 10:02 am #41197gavinModeratorHi Randi,
What great news indeed! Time to celebrate!!
Best wishes,
Gavin
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