Clean so far (sort of …)
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- This topic has 71 replies, 19 voices, and was last updated 12 years, 11 months ago by jim-wilde.
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August 19, 2011 at 1:45 pm #47938lulu07Spectator
Jim….Wonderful news many clear scans in your future!! I also had some thyroid issues during chemo…on my CT it showed a fairly large nodule..my surgeon and onc thought nothing of it but, my PCP who I worked for 8 years was adamant about a biopsy….thanking God everyday the biopsy was negative….hoping that your issure is soon resolved…Celebrate your great news!
August 19, 2011 at 12:51 pm #47937jim-wildeMemberMarion, the hair deal is only small amounts at a time, so there’s no appearance effects … just a nuisance. And yes, it was great to finally meet dear Kim, even if if had to be at the hospital. We’re working on a lunch in Philly soon, which will be a more fun setting.
Gavin, we’ll see if it’s definitely the thyroid mischief at work. If the blood test comes back positive, there apparently are other blood tests and Dr. Siegel said I would get a PET of the thyroid area next in that case also. The docs at Presbyterian are unbelievably thorough. I mentioned to Dr. Siegel that I had a soreness deal on one of my ribs and she immediately had a radiologist reexamine the CT’s to make sure nothing was going on there. Turns out it’s likely a bone bruise of unknown origin.
August 19, 2011 at 10:34 am #47936gavinModeratorHi Jim,
Great news on the scan results and thanks for sharing that with us all. And I hope that your doctors manage to get to the bottom of your thyroid issues and can do something about that as well. Looking forward to hearing more good news from you.
Best wishes,
Gavin
August 19, 2011 at 4:05 am #47935marionsModeratorJim…how great is that? You had a clean report and you were able to connect with Kim in person. It is a great feeling when meeting someone we know solely by contact via this discussion board. I am happy for both of you.
I have to ask this: will your hair grow back?
All my best wishes,
MarionAugust 18, 2011 at 11:39 pm #47934RandiSpectatorJim, Sounds like you have the right attitude and the right surgeon. I look forward to hearing good news from you soon.
-Randi-August 18, 2011 at 9:41 pm #47933jathy1125SpectatorJim-so excited for you!! Hope you and Janis “Dance like no one is watching”!!
Lots of prayers-CathyAugust 18, 2011 at 7:52 pm #47932nancy246SpectatorJim, Great news on the clear scans! Whew! Yes, you and Janis enjoy your celebration. You both deserve it!
Jim and Lainy, Hope you get your thyroid problems under control ASAP! Seems to be a common problem these days and as Jim said generally easy to control but not fun while you are trying to figure out what’s happening!
Hugs. NancyAugust 18, 2011 at 6:16 pm #47931lainySpectatorHi Jim, love the good news! The good and bad passions! Bad=CC and Good-Janis!
I also am having a Thyroid problem! Went to an endocrinologist and he says my Thyroid is enlarged. Go know! Anyhew, I am having a terrible time getting regulated on Insulin (DiabetesII) and found out that an enlarged Thyroid can throw off the whole system. Pancreas, glands, glucose! I see him again Wed. next week and he is going to run some Thyroid tests and try to get me ‘regulated’.
I am so very happy for your results. Have a wonderful celebration!August 18, 2011 at 5:40 pm #47930jim-wildeMemberJust had a bit of a scare. Had a series of CT scans 8/16/11 as a result of two elevated CA 19-9 tests (1st was 88, second was 133 after several years of normal [< 37]). The scans were totally clean (we were expecting very bad news)! So the onc Dr. Siegel has ordered a thyroid blood test. I'm still learning about some of this stuff. Apparently, an inflammation can cause CA 19-9 results to be elevated. Also, learned another piece of information I was previously ignorant. Dr. Siegel's PA told me that hair loss (which I've had for some time) is consistent with thyroid issues. The good news is that thyroid issues are generally pretty easy to manage; cc not so much. While at NY Presbyterian, I met my dear friend Kim, for the first time. She was there for a procedure, which had yet to begin when we parted. A very special occasion for both of us. So, I have dodged another bullet and approaching 2.5 years clean. Going to celebrate very soon with my long suffering medical advocate, dear wife Janis, very soon. Sometimes I can’t believe how lucky I’ve been. I hate cancer with a passion!
June 6, 2011 at 12:44 am #47929nancy246SpectatorJim, I love how you always see the postitive!! Best of health to you! Nancy
June 5, 2011 at 9:37 pm #47928marionsModeratorJim…no, I can’t think of one single person similar to your experience. You are very special. But, then you already know that.
All my best wishes,
MarionJune 5, 2011 at 9:14 pm #47927jim-wildeMemberJulie, you know there’s something perversely good about cc in my case. Had I not had cc, the malignant lung nodule would never have been detected until I respiratory symptoms, and that would clearly have been too late. The artery would have been wrecked and I would have been a goner. How many can say cc saved their lives?
June 5, 2011 at 8:51 pm #47926julieanneMemberThank you for sharing good news…it helps my husband to know that surviving is a very real option…that he can live more than the one to two years he was given a year ago. He now talks about what we will do when I retire in 12 years– a major change over his attitude only a couple of months ago. Keep healthy!
Regards,
JulieJune 4, 2011 at 9:04 pm #47925gavinModeratorThanks for sharing your good news Jim, great stuff indeed!!
Best wishes,
Gavin
June 4, 2011 at 7:57 pm #47924jim-wildeMemberI’m feeling pretty good for being a pinata for three hours. A little sore, but otherwise fine. What’s normal anyway?
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