February 11, 2015 at 3:35 am #86639mbachiniModerator
So happy for all the good news!!! Please enjoy your trip…you both deserve the time to relax, enjoy and think only happy thoughts!! So happy for you!!
MelindaFebruary 11, 2015 at 12:13 am #86638chezwrightaol-comSpectator
Have a wonderful trip to Oregon! I know you will enjoy every minute (and not be deterred by the snow that seems to have hit the East this year ! Such great news about the CA19-9 marker!February 10, 2015 at 11:03 pm #86637marionsModerator
Kris….fantastic. Time to let down and watch Duke dancing in his street. Perhaps his lovely wife can send the video to us.
MarionFebruary 10, 2015 at 9:35 pm #86636
There is dancing in the streets….not by me since I don’t want to scare our neighbors off but I am sure someone will. His CA 19-9 came back today and it was 16.2 which is the lowest it has been since this started. Talked to Dr. P a bit more and he says that with this protocol he does…..if you complete it and survive it then after two years the survival rate goes up quite a bit. I told him I guessed he killed off those who wouldn’t make it anyway It’s a good thing he knows I am joking with him.
SO we get to go on our Anniversary trip with nothing hanging over us. Taking of Thursday and going to see some friends in SE Oregon and visit with my mom who lives in the same general area. My sister who has been a good support will meet us there too. Looking forward to some us time.
KrisVFebruary 10, 2015 at 7:25 pm #86635gavinModerator
Loving your news Kris, big time!!!February 10, 2015 at 2:48 am #86634dukenukemMember
There’s dancing in the streets!
DukeFebruary 10, 2015 at 2:01 am #86633
I was so suspicious today that when they accessed his port to draw blood I made them leave it accessed so “Just in case” he needed a CT Scan then he wouldn’t have to have another IV stick. He just rolls his eyes at me but grins and bears. I did have to de-access it when we got home because they didn’t have any heparin to put in it.
Dr Picozzi just laughs at me.
We did get some questions asked today which was a first. I usually forget…..and I am such a proponent of writing them.
Does not see the need for the Shingles immunization right now. Says that once he turns 60 then maybe but no need right now.
Also he should continue to take his Ursodial for the time being. He says we can revisit that in May if everything is clear.
And he could have surgery on his shoulders IF he wants….he doesn’t want.
KrisVFebruary 10, 2015 at 1:16 am #86632iowagirlMember
Awesome, awesome, awesom. Fantastic news!!!!
Julie T.February 10, 2015 at 1:13 am #86631chezwrightaol-comSpectator
Wonderful news, Kris! I understand about going longer..my doctor said if clear in July, I can go to every year! I gasped. He took it to mean I was unhappy to still have to have a scan. I had to explain that I didn’t know if my nerves could take going a full year without reassurances! It is so hard to “let go.” But I am so glad to hear such good news for you all!February 9, 2015 at 11:16 pm #86630lainySpectator
Oh, Kris, such great news. I know it can be hard to let go of what they have been doing, but Mark’s ONC seems to be very watchful and after all this no choice but to trust him. I loved having Mr. T home with me but then we were not married that long. It IS good news, so enjoy!February 9, 2015 at 10:56 pm #86629marionsModerator
Kris…..Wonderful, wonderful news. Enjoy, dear Kris, so much to be grateful for.
MarionFebruary 9, 2015 at 9:02 pm #10932
Saw oncologist today and everything looks good. Only did labs and a chest x-ray, no CT Scan but does not feel the need for it. Tumor marker wasn’t back yet but he just was NOT worried about it at all. So back again in three months for another scan and labs then we can graduate to every 6 months….not sure I am ready for that but we’ll see.
He did say IF they got the tumor marker back today and it was elevated again then he would schedule us for next month for a scan but he says he really is not worried about.
He laughed and told Mark that he was one of his stars since he was not only able to complete the whole nasty regime but that he survived it. His nurse said that most people can’t do either the full 6 months of the Gem/Ox or they can’t tolerate 5 weeks of the 5FU with the radiation. He also was very surprised that Mark was well enough to go back to work full time. And I said he had to go back to work because he was bored and costing me a fortune.
Big relief today. Thanks everyone
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