I have read statistics for 3 year survival and 5 year survival. Guess I’m wondering how the statistics go once you’ve gone 3 years without a recurrence….still hoping that the odds improve with each passing scan….There was someone on last year who had survived 15 years…don’t know how many are out there.
I don’t know what kind I had! Should find out!
I don’t know the numbers, but it seems to me that most people on this discussion board have had ICC and I am in the minority with ECC (as well as stage 2b). That is why I hesitate to hold up any of my treatment/outcomes as a model for anyone. Everyone is different and I would think that survival has factors that we don’t even know.
Hi,
I think everybody is different, for example I had 3 resections and I just finished with RFA During my 4 recurrences in a 53 month period. However, I think Randi still clear of recurrence after 3.5 years.
She has extrahepaticCCA and I have the intrahepatic kind.
Stats in general shows recurrences with a high % between 50-75% with the distal CCA has the lowest recurrence rate and ICCA the highest. But as you know, some members here did not have any recurrences after 7 and 15years.
Randi…Wonderful! Would you happen to know of any statistics of recurrence after a period of 3 years? You just posted on my 3 year clear posting, and I just reread that you are now 3 1/2 years out and your doctor says only a couple of more scans. I have never really gotten an emotional handle on the diagnosis so I examine everything from all angles! Wondering about the statistics this far out…Has your doctor said anything about that?
Thanks!
(I know what you mean by scary..about 3 months from scan I start to feel it’s time for reassurance!) My next scan is 6 months away….
Susie:My next scan is in August, mostly because that is the time period that makes me comfortable. The Onc said that I will probably only have a couple of more scans and then be released from his care. scary…