Clear scan four years!
- This topic has 15 replies, 8 voices, and was last updated 10 years, 4 months ago by
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Gavin and Melinda. Thank you!!xxoo the only good thing for me about CC was losing 35 pounds! A lifelong struggle. And sure enough it all came back. Now to lose it and not worry that I am losing because of CC. The mind does strange things. At least mine does
You’re most welcome Kathy! And like Melinda says, your story gives hope to tons of people here! And remember, that for every person who is registered here with the CCF and logs in and reads you news, there are tons and tons of people who read these posts who are not logged in and have not signed up to join the CCF. So your great news reaches soooo many people!
Hugs,
Gavin
Dear Kathy,
Congratulations on the great news! Always so good to hear such wonderful stories of success! Gives such HOPE to so many others! Thank you!
MelindaGavin, Kris, Karla and Sara (Willow)…Thank you SO much! I am trying to convince myself that life is normal now
whatever normal is….Marion..thank you for letting me know about Dr. C. I truly miss him. He had such a connection with his patients that is unique and goes beyond surgical skills and knowledge. Thank you for encouraging me to write. I have already looked up his address. I am glad to hear he is happy in his new position in spite of my trying to convince him that Texas was nowhere near as good a place to live as Maryland (sorry Texans!). When you see him again, remind him of his fan club in Maryland who owe their lives to him.
Kathy….Your favorite surgeon chaired (2012) the NCI Hep. Task Force of which I am one of two advocates. He is an ongoing member of the cholangiocarcinoma foundation medical advisory committee and yes, I last spoke (in person) with him at GI ASCO. He is happy with his new position in Texas, loves his work and his patients. Don’t hesitate from reaching out to him.
Love, love, love the way you break the bank, dear Kathy.
Hugs,
MarionFabulous… Congratulations, Kathy! So glad you had a big fun European adventure this summer. Really nice to hear good news!
Kris. Thank you! It is so comforting to know there is a cheering section out there. I love coming back to this site and recognizing familiar names over the four years.
Lainy. You are right. Time to get those innards under control and show them who’s boss. I am sorry to ear of this continuing struggle and hope your August appointment gets you more relief.
Big hug,Kathy
What great news!! LOVE LOVE LOVE reading this post! Here’s to more clean scans and a great lessening of scanxiety!
Marian..have you heard anything about “my favorite surgeon?” I do miss him! I don’t know if he does any more surgery for cholangiocarcinoma or Is too busy being head of surgery The girls are 14 and 15 so I do have to hang around a bit longer for them! They are great! The 15 year old just went on an international dance exchange to Europe for a
Month so we were groupies and followed her to Denmark then spent 3 more weeks, 2 with our son, his wife and three young children (who live in Ireland) in a chalet in the Swiss Alps. Broke the bank but it was heaven. Life is good.
I was so pleased to hear about the new study being done on younger patients.Kathy….this is the most fantastic news to share with us. Have you shared it with your favorite surgeon yet?
How are the girls? They must be nearly grown up by now?
Hugs
MarionWhat brilliant news! Thanks so much for sharing that with us all and I know that news like yours gives so much hope to everyone else! My fingers are so crossed for you that your next 2 scans are equally as good so that you go onto the yearly ones.
Hoping that the good news continues like it has for you and please keep us updated on everything.
My best wishes to you,
Gavin
Thanks for mentioning it. I am doing fairly better. The Remicade I think could work better, we shall see. I have an apt with the GI on August 5th and I want to talk to him about a new FDA approved RX called entyvio. We did talk about it last time but he wanted me to continue the Remicade. We upped the dosage but its not that much better. One more thing I want to present to him is…there is a new procedure now for Ulcerative Colitis and no delicate way to put this….. it is called a Poo Transplant. That says it all and my daughter is willing. I just think 3 years of being dictated by my innards is long enough!! BUT I am so very happy for you!!! And its so good to see your smiling face on here.
Dear Lainy…you have been such a support to all of us for so many years…..I hope you are doing well..last time I was on, you had a scare..hope that is behind you….xxxxxoooo
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