Cleveland Clinic Docs

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  • June 5, 2015 at 12:31 am #88435
    dukenukem
    Member

    I am currently seeing Dr. Sohal. He is very straight forward. He has answered the questions I wanted answers to. He seems to have several strategies in his bag, not just the conventional gem/cis, gem, FOLFOX6, and then “I’m done”. He is heading up a clinical trial – LEE011 for Patients With CDK4/6 Pathway Activated Tumors (SIGNATURE) – NCT02187783 – which I wanted to get into but my platelets were too low, <100,000. He's still a little conservative - I thought Mayo was a little more open to "out of he box" thinking. He sees quite a few but not the number of patients that Mayo does so he is not familiar with some of the more "exotic" treatments. But he is still much better than the onc I was seeing at the local branch of University Hospital's Seidman Cancer Center in Mentor.

    He is familiar with Lisa Craine’s history. Interesting that he knew her by name, not just “Patient 1234”.

    I’m satisfied with his care.

    Duke

    June 4, 2015 at 8:49 pm #88434
    marions
    Moderator

    Christine…you can google the names of these physicians – correct information should appear.
    You would want to make sure to consult with a physician treating a “high” volume of CCA patients.
    Several serve on our medical advisory board as well:
    http://cholangiocarcinoma.org/the-cholangiocarcinoma-foundation/advisory-boards/
    Hugs,
    Marion

    June 4, 2015 at 4:24 pm #11344
    christine1015
    Spectator

    Thinking of getting a 3rd opinion at the Cleveland Clinic. I went through all the old posts and see Dr. Sohal as the onc and Dr. Fung as a surgeon pop up a lot.

    Are they still the right contacts there?

    thanks!

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