Clinical Trials – know your endpoints

Discussion Board Forums Surgery, Resection & Transplant Treatment Options Clinical Trials – know your endpoints

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  • #67445
    gavin
    Moderator

    Yep, agree with you both. The piece from the WSJ was a great one and should someone wish to read it then please just copy and paste this into google “How a Cancer Patient Gives Back to Her Doctor” and it will take you right to the article at the top of the google search page! We can’t unfortunately link to it for copyright reasons. That was a great piece and articles like that where there are a lot of direct comments etc from those involved, patients, the doctors etc I like a lot. But some of the nonsense headlines we see in the papers here eg – “broccoli can cure cancer” I disgard immediately for obvious reasons. The WSJ piece has a lot of quotes from Dr Ghasan too so that gets the thumbs up from me!

    So right Marion about some journalists tending to highlight the spectacular and that is one of the reasons why I also pay no attention what so ever to most finance journalists and what I see in financial media. Actually, many of these types and the claims they make re markets etc are total and utter garbage!

    I’ll get off my soapbox now!

    Hugs to you both,

    Gavin

    #67444
    marions
    Moderator

    I agree, journalists have the tendency to highlight the spectacular attention drawing stories and some are downright wrong and misleading to the patient population. We must remember, if there were such a thing as a magic bullet then wold we not have conquered this thing called “cancer.”
    Hugs
    Marion

    #67446
    debnorcal
    Moderator

    Gavin, I generally agree with your point. Once in a while there is a well informed, researched piece, though.

    There was an article titled ” Patient gives back to Doctor” that was printed in WSJ 10/18/16 that I found very inspirational. The patient, perhaps a member of this board (?), is using her talents and connections to raise funds for CC research. I think it also perhaps divides some public awareness.

    Debbie

    #67447
    gavin
    Moderator

    Personally I try and avoid what the mainstream media print in stories about cancer treatments as my thinking is always along the lines of how does the journalist know what he/she is really talking about? Do they understand fully the implications of a report or study and as far as these stories go about this cure and that cure that some of the less reputable papers here in the UK print, well I don’t even read them!

    When we do get a good news story though on a treatment or drug etc, I like to go to Cancer Research site here in the UK to get their take on it and they always do a round up each weekend of what was in the media the previous week for cancer related pieces.

    Good link above though, thanks!

    Hugs,

    Gavin

    #7727
    marions
    Moderator

    For journalists, what matters here is that you explain how positive results related to surrogate endpoints are no guarantee of a longer, healthier life compared to standard treatment (see this chart for a very easy-to-understand explanation).

    Read more here: http://www.healthnewsreview.org/2016/10/six-tips-writing-accurately-cancer-immunotherapy-drugs/

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