Clinical trials question
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Thanks for the info Gavin, Kim is now going in for her ‘work up’ on Tuesday next week as this will be followed by the SIRT treatment the following week. I have laughed with joy and cried so much today as this truly is our what seems to be our last hope. I just hope and pray that this treatment can either keep the tumours at bay or destroy them. She is very fatigued at the moment due to the high level of morphine we think but although scared she is excited that there is still hope x
Mizzey,
Here is some info re SIRT in the UK, hope it is of use to you.
http://www.ammf.org.uk/cholangiocarcinoma/treatment-options-2/
Hugs,
Gavin
Mizzey…hope and wish for you to receive an answer real soon. Here is a link to SIRT and the listed indications:
http://www.sirtex.com/eu/clinicians/about-sir-spheres-microspheres/approved-indication/
Hugs and my best wishes,
MarionThanks Marion, we seem to be quite some way behind the US but I would welcome any comments from others for anything else that we might be able to ask or try for here in the UK. Still waiting to hear if SIRT an option.?
Mizzey…..this clinical trial is recruiting in the UK only:
https://clinicaltrials.gov/ct2/show/NCT01926236
It is a “randomized” study meaning that patients are divided in 2 groups:
Group 1 will receive FOLFOX
Group 2 will receive symptom control in order to receive best care for anything that is related to the disease or disease progression with focus on the best achievable quality of life.
I hope this helped, but wish for others to share additional info with you as well.
Hugs,
MarionHi There
Went to Oxford today to see oncologist who was talking about an option for Kim to do a clinical trial
A trial looking at oxaliplatin and 5FU for advanced biliary tract cancers (ABC-06)
http://www.cancerresearchuk.org/about-c … cers-abc06
I also discussed the possibility of sirt and they are going to review again but because of ascites and her resection she might not be eligible. Without treatment a prognosis was given of about 6 months and they cant guarantee whether she will get the chemo option on the trial. Can anyone else shed some light on the trial proposed? Is this something that has been offered in the US? Kim is Stage 4 now and her liver has about 7 grape sizes nodules/tumours? . She also has lymph node involvement around the abdomen and ascites.
Bitter sweet day as her daughter had a GCSE results today which were fantastic.
Love to hear of anyone in a similar situation or been through these options themselves x
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