October 31, 2010 at 11:00 pm #40530
i rember several stent tries for bile ducts,was hoping this was not same kind of issue seams my body worke a little better today, sometimes a ensure or boost seams 2 much i will talk with dietition monday i have another scan the 10th on anther spot outsde the liver might be nothing its hard for them to even read biopsy on this colangio without physically seeing a colosomy back be a option who know its so hard doing all by myself ready to move away thanks marions and othersOctober 31, 2010 at 10:15 pm #40529
Mr. J… it appears that the stenting has not worked and they need to take another look at it. Hang in there and stay persistent.
MarionOctober 31, 2010 at 1:15 pm #40528
I was in umiversity hospital for 10 days they put a stent in to open up striction,but hasnt given much relieveOctober 31, 2010 at 6:24 am #40527
MrJ……..Definitely, I would make an appointment. You might want to explain that your food is not digested by the time you vomit it back up and, that this happens after three day. Have you tried adding enzymes to aid in the digestion? Also, blending the food (doesn’t look so good however, it will still give you the nutrition needed) might be helpful. I am so sorry to hear of all the issues you are dealing with, but your problems needed to be addressed and only your physician will be able to help you sort this out.
Please stay in touch.
MarionOctober 31, 2010 at 2:04 am #40526lainyParticipant
Mr. J, sorry, I don’t know why but I first saw this thread today. Teddy is on Morphine now which is very binding. Hospice has him taking 3 colasce in the morning and 2 Senna in the evening. One is to make the bowel work the other to make it work easy. Also he can’t do dairy at all. I give him Skim or No Fat milk. Dairy can cause lots of gas for him. I know when he is bloated it is so uncomfortable. We found a product for hiccups but it is really for bloating and pain and is called Brioche. (sp) You can get it at Walgreen’s and comes in a blue plastic bottle. I believe it’s Italy’s answer to Alka Seltzer. It works wonderful for him. Maybe becaue he is Sicilian? It must be awful to be going through this all alone. Where are you being treated? I have another type of Cancer and I bloat alot. OK, so now you all know! I stay away from fiber as it REALLY makes me feel worse, but that is me. Have you tried and I am sure you have, supositories? gee, I don’t know what else I can say, I feel your discomfort! Please keep us posted on your progress.October 31, 2010 at 1:48 am #40525
had stent put in for stool to come out always feel bloated need helpOctober 8, 2010 at 11:25 am #40524
I am trying to stay with the most recent gi doc that said take fibercon for bulking, I think there missing the point that it wont come out right gurgles and goes elsewhere when trying to go,after the 3rd day I get so sick I vommit the food that never left my stomach from previous I will ask him today about lactulose,but he kinda wanted me to stay away from laxatives,he thinks I am going to much,I would rather go when I want to not when I cough and soil little amounts evry 15 minutes this has been going on since may and am not squeduled for follow up for 2 months and he has not returned any calls. Do I have to make anoth apointment 50 miles away just to talk to him to get help with questions !October 8, 2010 at 4:17 am #40523charleaParticipant
You mentioned Miralax which I found to not work at all for me. My mother took it as well when she had metastatic cancer and it did not work for her either. Lactulose can be helpful for some people as it draws water into the stool and helps it pass more easily. Prune juice is still a great stand-by to add to the regimen and adding wheat bran to cooked foods helps too. I add it to meat loaf, quick breads, cookies, and cooked cereals. I hope you find something that works well for you soon as a poorly functioning gut takes a lot of pleasure out of daily living.October 7, 2010 at 1:01 am #40522ironbarkMember
Hi there Mr J,
Ask your doctor if a steroid might help to reduce some of the inflammation in your bowel – it may not be an appropriate treatment for you, but asking doesn’t hurt.
It reminds me of the old story where the different parts of the body had a discussion over which was the most important, and the end part was that it was the a*hole (sorry about that). What I’m trying to relate is that if your bowel isn’t working properly then it affects everything else in the body, so it becomes extremely important to you.
You’ll probably need to see a combination of people to help with your case, and doctors are only part of the picture. Get a referral to a dietician for example, who can advise you on a diet that will provide you with the nutrition that you need while not overtaxing your bowel, and an Occupational Therapist may be able to assist with issues around continence and regularity, and even pad supply if you need them.
I hope this issue resolves soon for you Mr J, look after yourself.
LesleyOctober 7, 2010 at 12:02 am #40521
I think they are trying to regulate my bowel movements and clump up stool at this point acording to GI doc which I only got to talk to brieve to tell me fibercon, the laxatives where what the radiologist doc gave me because I was so full of stool during previous tests. I have another scan nov 9 to see if any change in spot liver doc wants to look at laprascope or posibble surgury to remove something that there not sure is cancer or not. I just dont want to get weaker and eat even less after surgery and maybe radiation if needed would like other issue corrected first or I might have a big problem living alone during the winter afterwards and driving to treatments thanks guys for any help so far and hope all your health is consistant. I will be reading quite a bit until I resolve the issues,thats the only way to learn and they dont tell you enough exspecially without a advacit and being sick more like take advantage of seams to me and they dont have time for each patientOctober 6, 2010 at 9:06 pm #40520gavinModerator
My dad used to take Lactulose twice a day every day and that worked quite well for him, have you tried that? My dad also tried Movicol but found that not as good as the Lactulose.
GavinOctober 6, 2010 at 7:13 pm #40519
its possible the scar tissue from the resection is restricting from the original spot I will ask about motilty or anti spasmatic conditions the kink has been there since surgery and have had this issue on and off since jan 08, just never had the mucus and restriction problem thank you for the help guess I need to be here more often now that quality of life has not been good and not looking foward to the cold got to keep positiveOctober 6, 2010 at 5:21 pm #40518
You will need to drink much when using a stool softener. Possibly, another medicatin will work better for you.
Someone else may come along with some more suggestions however; you may also want to check our google function, top, right. Simply enter: stool softener, or you may want to try the word: laxative. You will be able to read through the volume of discussion regarding this subject. I would also speak with the physician. Have they ruled out motility or a kink in the intestine? Be persistent. And, if you need to have someone else advocate on your behalf then do that. Your surgery occurred many months ago and I would think that this problem should have resolved by now.
MarionOctober 6, 2010 at 5:08 pm #40517
I am still having bad gas and little to no stool with mucis,the gas is internal and gurgles alot,when I try to pass stool, I am now on fibercon and still no real differance,the liver surgeon says this is not related to a new spot he wants to look at, I would like to get healthier first before anymore surgeries or radiation I always feel like I have to go even if I am totally empty,they say no chrones or c-dif or parasites what else causes mucas in the stool so bad,seams I drink alot and always am dehidrated I am going to keep positive and pray that god has the answerAugust 11, 2010 at 12:55 pm #40516devoncatParticipant
Uhhhhhh, sorry about that Mr J. You would think there would be more of a team approach to patient care. Good luck on MRI.
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