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  • #35123
    darla
    Participant

    Donna,

    I am so sorry for what you and your husband are going through. I too am sending lots of positive thoughts your way and hoping for the best. Take care and keep in touch. We are all here for you.

    Darla

    #35122
    gavin
    Moderator

    Hi Donna,

    I am sorry to hear that your husband has had a tough week. But please don’t give up hope. Margaret is right in that none of us knows what the future holds and I am hoping that the chemo will show some good results for your husband

    Please try and stay positive and I am sending you a load of postive thoughts and good wishes.

    Gavin

    #35121
    marions
    Moderator

    Donna….recurrence of cancer post surgery has been reported frequently, on this board. This cancer is unpredictable and loves to through curve balls at us. The Gemzar treatment has shown positive responses in many and your husband may very well have similar results. I do agree with Margaret in that I would search out another opinion or two regarding the proposed treatment with Gemzar. You would want assurance that the recommended chemotherapy is agreed on by other specialists also.
    I am thinking of you and sending all my good wishes your way,
    Marion

    #35120
    mlepp0416
    Participant

    Donna9:

    Welcome to the site where no one really wants to be a member, myself included. I am my husband Tom’s caretaker. Tom was diagnosed with CC in March 2008 and in July 2008 he had 3/4 of his liver removed because of Cholangiocarcinoma. All the doctor’s were telling him he was cancer free. No Chemo, no Radiation. In November of 2009 he started turning jaundiced. You can read more on this site about his journey under mlepp0416.

    Like you we were in disbelief when they told us that he had a re-occurance of the cancer. We too asked ourselves “How can this be?” It’s a question that will most likely never be answered. Cancer is very evil and all you can do is to try to be very positive for your husband. Tom’s original oncologist gave him 6 months and told him to go home and get his affairs in order.

    We didn’t like that diagnosis and sought 2nd and 3rd opinoins. Although all the doctors agreed that his new tumor was inoperable because of it’s location (in the middle of his remaining biliary tree in the rt. lobe of the liver, including the main blood vessel) two of the three strongly suggested radiation and Chemo.

    Because the liver was blocked, Chemo was a no go. He has had about 27 radiation treatments and his bilirubin level climbed to 24.7. Luckily Tom did not have any side effects from the high bilirubin. Blood work today showed that his bilirubin level is now down to 9.9. So we are on the right track.

    No one knows what the future will hold. Don’t give up hope. Do all the research you can, ask all the questions you can. If one treatment won’t work, ask about the next one. No one has an expiration date stamped on the bottom of their feet (or on their butt!)

    Get more than one opinoin. Last of all NEVER GIVE UP. Keep fighting, keep looking and above all believe in the power of prayer!

    Go with God and KEEP KICKIN’ THAT cancer.

    Margaret

    #3132
    donna9
    Member

    My husband has had a tough week or so. He was scheduled to start aggressive radiation/chemo infusion treatments today. we had ct scans redone to restage his ca. He started with grade 3 stage IIB T3N1. Now his pancreatic ca has spread to the liver and several more nodes which put a stop on the treatment. Now, no radiation and starting chemo in the AM. He had a port done this am. The oncologist says this is his only hope (gemzine)
    After reading up on Pancreatic can with mets to the liver. I am not feeling as possitive as I did a few days ago. He had his whipple 11-6-09 and the surgeon said he was 99.8% cancer free. How can this be? we are very confused at this point.

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