Discussion Board Forums General Discussion Coping with ascites and other symptoms – inoperable CBD

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  • #92453
    marions
    Moderator

    Rangani…..there is a wealth of information hidden in the threads. I know that many of your questions will be answered by reading through the various postings available to all.
    Please make sure to mention the leg pain to the physician. In today’s age, no one should have to suffer; there is plenty of medication available.
    Stay strong.
    Hugs
    Marion

    #92451
    lainy
    Participant

    Dear Rangani, I go your email and just sent you the 10 Signs and I sincerely hope it helps. If I can help further just let me know. Thinking about you and sending prayers and strength to you!

    #92450
    rangani
    Participant

    Marion, thank you for your reply. Will look for other discussion threads on the subject. My mother has recently been talking of leg pain, I wonder if it has spread to bones :( The doctors have advised due to her age and also her written instructions on end of life care, that only palliative care is given. We are also not doing any further scans to ascertain progress. So treating each symptom as they arise.
    Thank you for your comments
    Regards
    Rangani

    #92452
    marions
    Moderator

    Rangani…..welcome to our site. Similar to your mother, many patients undergo regular paracentesis (removal of fluid from abdominal cavities.) I hope for others to share their experiences with you. You may also read up on previous postings by entering “paracentesis” in the “search” function on our site.

    In regards to reducing the frequency of fluid buildup, some have benefitted from lowering fluid and salt intake as well as treatment with diuretics. Please discuss with the physician.

    Cholangiocarcinoma (bile duct cancer) develops in the bile ducts within the liver (intrahepatic,) or the bile ducts exciting the liver (extrahepatic.)

    I have learned that primary and metastatic tumor growth is based on many factors. Primary tumors tend to grow (expand) at the anatomical site (where it began) whereas metastases can appear in any part of the body. Based on your comments, I assume that your mother has distal cholangiocarcinoma; the tumor is located from the upper border of the pancreas to the ampulla of vater.

    This cancer can metastasize to the bone, lung, liver, and peritoneal cavity. Less often it spreads to the ovaries or brain.

    Hugs,
    Marion

    #12527
    rangani
    Participant

    My mum was recently diagnosed. She is 86. We went to see doc because of acute ascites and jaundice. The scan showed CBD obstruction and elevated CA19-9 confirmed diagnosis. A stent immediately relieved the jaundice and itching. however in the 6 weeks since diagnosis, we have had 5 hospital visits with average of 3 litres aspirated. Has anybody else had same experience with ascites? Has anything worked to reduce the frequency with which we need to do the belly tap?
    The scan also indicated the growth is moving towards pancreas. My web searches indicate this seems to be not common, most posts talk about growth spreading to liver. Any views? What is prognosis for progression?
    Thank you

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