CT and PET scan results!!!!!
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Kris…..what a way to end the year and welcome the new (including a new boyfriend!) This is fantastic news. Good luck with the job search, but then you are on a roll and I expect for this to turn out well too.
Hugs,
MarionLainy:
I did not see that post. But that’s great! I’ll wait to hear about the new guy when he shows up!!
Kris, Maria put into words such profound insight. Sure, the goal has changed and you have every reason and right to feel scared and disappointed. Maria’s comments are SO right on the money as to how we can cope by thinking a different way about definitions of disease and health. Hope it does bring peace you.
WillowYea, Kris, I would call this a good news day! No relationship that requires so much mental work is meant to be! It should just flow. There will be someone else. Not sure if you read what Teddy said a week ago through the Medium but he is sending me someone. Don’t know when but if he does good, I will tell him to send you someone too! I am most happy that you sound more relaxed now. Yea, again!
I met with my radiologic onc today and he said he could not have asked for a better outcome. He explained about the PET scan. There were no numbers, just “mild uptake”. He said every active cell has mild uptake: from brain, stomach, etc…. so the cancer cells are not much more active than “normal” cells right now. So that’s a “YAY”!!! He agrees that I am not a candidate for surgery.
He also said that the cells will “wake up” one day and either start growing or spreading. But it’s unknown when. 6 months? 2 years? Only God knows that one. So we will start treating this as a chronic illness. One that I will live with. And one that we will watch closely.
I need to start looking for a job since nothing is going on until Feb., March, later or earlier… love this part of my life!! But I’m going to plan for nothing happening and me being able to work…
On a down note, Tom and I split up. It’s only been 4.5 months, but it seemed like longer. He was very supportive but he has issues I can’t help him with and lately he was trying to decide if he wanted to work on having a relationship. And with his issues I was having my own problems with the relationship. So that’s it. Quick and hopefully with all this good news lately a lot less painless. Still hard not to text him the good news this morning tho. He was a very important part of my life for a short time.
Other good news: COBRA extension was approved. So now I can breathe another sigh of relief! I don’t have to worry about how to cover my medical bills!! YAY!!Maria, thank you for your beautiful words of wisdom, befitting for anyone! We do need to remember in life that words are just words. Over here in Phoenix it is sunny, 75o and beautiful. Again thank you, Maria, I have read and reread your post!
Kris, I will never be “cured” either.
But what does cure mean? Nothing to be seen on scan or living a good life? What’s most important? Maybe we have to aim for living and staying health and skip the clean-scan-part?At least I think that this is possible. It’s been possible for me the last 2,5 years.
At my visit to the doctor the other day (stable disease) you could really start wondering who was sick/healthy… Comparing me, the nurse and my doctor I don’t think anybody would have guessed I was the one with the bad diagnosis.What is health, what is disease, what is CANCER? Words trying to describe something, but life is much bigger than that. Much more complicated and not so black and white. Typically humans wanting to put everything in nice little boxes, classified and easy to understand.
Here’s to us and to a nice day above earth
( November in Sweden…. dark, rain, cold…well, let’s give ita try 
)Maria
I agree with Lainy and Marion, Kris. You have done great so far and as long as you can improve or stay the same, that’s ok. But what I really want is for a cure and for you to have it. I will keep on hoping and praying for you. You are such a great person.
Love, -PamKris….the news is still very good, dear Kris. This cancer can be treated similar to that of a chronic disease long in duration and generally slow progressing. For the present I am thrilled to know that another game plan is in store for you. And, who knows what the future holds? Research is increasing for our disease and the next good thing might very well be around the corner.
Hugs to you,
MarionKris, I will be cheering you all along the way! I think you have a good goal in mind and then who knows, by the time you reach that goal, what may be discovered. And, hey, if you need to warm up this winter, I sure don’t mind the company!
Laing: I agree it’s good news. But still scary to be told by the doc that I will never be “cured”. He asked me if I understood that. I do. I just pray to stay healthy. If we can keep it from getting me sick, and/or spreading its a good thing. I will take that. I would LOVE to keep it at bay for at least 5 years. And who knows? The oblation MIGHT just kill the tumor and then I would just have to accept that it would return. Best outcome at present and one I will pray for.
Kris, as long as there are other options, and as long as you are keeping the CC held down, it is good news. Who knows, you may be that special person who keeps it all at bay without surgery. Now we need you to readjust your thinking and be the little engine that could. You have a lot going for you, good ONC, good Scans, good attitude. Like Teddy would say, it is what it is and now let’s fix it! Sending you much love.
Good news was tempered somewhat. Will probably never have a resection because of the lymph nodes. Dr. Fong is happy with the scan, tho. He said if it keeps dying that’s good. The tumor still shows activity, but it has slowed down.
He want to possibly talk oblation in Feb. or March. Easier surgery but means I will never be cancer free.
I keep saying I can live with cancer if I can stay healthy for a few years. Since I know how bad this cancer is… but it’s still scary to hear.
I could ask for more, but it’s still good news. It hasn’t spread any more and it hasn’t grown either.
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