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  • #23031
    karen
    Spectator

    Alright Lisa…way to go. Hope they publish your letter to help make others aware of the orphan status cancer blights. Thanks!
    Karen

    #23030
    lainy
    Spectator

    Unfortunately then they did not meet as Teddy was in Korea 1951-1952 then spent a year playing ball in Europe. He was Airborne 82nd. Sounds like you come from a very dedicated family! Not sure if there s any kind of testing but would be very interesting to say the least.

    #23029
    daddysgirl-2
    Member
    Lainy wrote:
    Hi Jolene. I told Teddy about your dad and he wanted to know what year he played ball in Europe. And what arm of the services was he in?

    Lainy,
    After Korea, dad was stateside. He went overseas in 1958, and began playing ball for military at that time. “We” had 3 tours overseas and dad played ball throughout his mil.career. Dad was AirForce, but then went to some type of security service…which I am guessing is why we spent our tours overseas stationed on Army posts. After dad’s last overseas assignment, he went back AirForce, and eventually retired after 23 years. My brother remembers what dad did during that time better than I.
    My brother went Navy, and chose EastPac for his brief military career. He was in Thailand, VietNam, Laos, Cambodia, Phillipines…his first assignment was the same place dad’s first assignment was in Korea, 25 years later. I am trying to get him into the doc for tests, if there is such a thing. I’m hoping that there were better preventative meds available to my brother through awareness than my dad and your Teddy had available. My cousin has already 18 years with Army, and he has been stationed in Korea and surrounding area. He’s currently stationed in Morocco.
    Jolene

    #23028
    jean
    Member

    Lisa
    What a great letter! You spoke well for all of us…thanks for doing it. I think I see another possible letter writing campaign coming!!!

    Jean

    #23027
    darla
    Spectator

    Good Job Lisa!

    I know just how you feel. Here they are promoting “Ovarian Cancer Awareness Month” I realize that it is very important to the women who have it or have had it, but again, it is a lot more common & cureable than CC. I too feel that people need to become more aware of this terrible incurable cancer that we all have had to or are now dealing with. It is hard to feel good about all the attention given to these other cancers when so very little is know about CC. This was one way to get some attention. I too would be interested to see if you get a reply. I am telling everyone who will listen to me about everything that happened to us & everything I know about CC!!!!! What you did was great & you have every right to be “cranky”!

    Darla

    #23026
    lainy
    Spectator

    Hi Jolene. I told Teddy about your dad and he wanted to know what year he played ball in Europe. And what arm of the services was he in?

    #23025
    daddysgirl-2
    Member

    Way to go, Lisa. You said what many of us feel…and not just persons that are diagnosed with the incurable cancer…but we family/caregivers as well. I would be curious as to the response from the editor that you may receive.
    Stay strong.
    Jolene

    #23024
    lainy
    Spectator

    You go girl! What another avenue if we all started writing to papers and magazines? Just bombard the public with our plight!

    #23023
    jclegg
    Member

    Good for you – that was something that needed to be said, and – you said it very well.

    Joyce C

    #1585
    lisa
    Spectator

    I got my e-mail version of CURE Magazine today. It’s a magazine that is about cancer. Well, there were three articles about breast cancer. I may be cranky today, but I’m sick of all the articles about breast cancer. What about orphan cancers? So I sent the editor this email:

    Dear Editor,
    I understand that breast cancer is one of the most common types of cancer, which is why so much attention is paid to it. But as someone suffering from a rare form of incurable cancer, it really gets tiring after a while to see article after article about breast cancer. I wish I had breast cancer. It

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