dad
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to DPB2011 Wow, I feel for you. My husband is only 51. When his cc was discovered he was 230 lbs, nice! and now he is 155, he is bones, weak, his pain continues to increase weekly and it is 6 months after his major surgery to remove tumor and do whipple operation. He has deteriorated ever since bu this scans and labs show nothing. They have him so pain drugged it is like you are covering up something that has gone wrong cause you don’t know what is wrong. We are furious. We will meet with surgeon on Tues and Onc on Wed and then decide what is wrong and if he needs nerve block. I know how you feel seeing our dad weak and skiny. My husband was HOT before, great muscular body and all the women were attracted to him BUT after this cc. He is a bone, like a 100 year old man in a convalescent center, weak, voice weak, holds his stomach when walking, you can see the pain in his face and as he walks every second. I have been seeing this for 6 months now and it is draining. This cancer takes its toll differently on every single person. I have tried to find the exact same case in other people and something , either symptoms, or treatments or something, never is the same. I feel for you terribly as all I think about is raising two kids myself someday and how much I hate the thought of that, and the house and pool and yard and I work full time. I also have thought if this is gonna take him, do it now then drag it out two years, it is draining on everyone and it is grueling on him!! Now he is not eating well due to pain increasing. Hang in there . My husband said he never wanted another surgery after the first HUGE one, but you know, if they have to go in and see what is wrong, I want them to do it. Cause the suffering every day is awful !!!! Keep us posted and have faith, they just may figure things out. This is the one place, this site, wher eyou can yell and scream and write down your tears, cuase in the real world we are trying to hold ourselves together all the time and not fall apart. It is not good for the sick person to see us fall apart or our kids. Anything can set us off, just a kind word or hug from someone and all of a sudden we are a basket case…just know knowing what is next, when will it get better. It sucks HUGE! But so many people have success, or good news or stories that are promising to everyone. My dad just died unexpectedly in his sleep, reading a book in a chair last month. It was not his time, he was in good health mental and physical so I have learned, live each day to the fullest, never miss an opportunity to share stories and memories and say I love you to people!!!
Hi dpb2001,
Welcome to the site although I am sorry that you had to find us all. And I am sorry to hear what your dad is going through right now. I am keeping my fingers crossed that your dad gets some good news tomorrow so please come back and let us know what the doctors say. We know what you are going through right now and we know how hard this is to deal with. So please, keep coming back and we will all be here for you.
My best wishes to you and your dad,
Gavin
Dear dpb2011,
Welcome and Tons of Hugs Your Way. I will be praying for your Dad and family. I am new here and you have come to the right places for support and help with your questions. I have recieve such encouragement, strength and knowledge from everybody here. I don’t have much knowledge on your Dad’s situation, but I can offer my prayers and hugs to you. Be strong and take of your yourself and your family.
Christine
I am keeping everything crossed for positively GOOD news for you tomorrow; that they find the blockage & sort it out. No one is born with a set expiration date & the one thing the doctors keep telling my sister is that they just don’t know. They don’t know how long she’ll live – & equally they don’t know when she’ll die. Many people on here have well outlived their initial prognosis. I was told if they couldn’t get my sister’s bile draining & clear her jaundice we were talking a matter of weeks … BUT they DID get it draining; they DID clear the jaundice & she’s coming up to her 1st anniversary now.
Please let us know how you all get on. We’re here for you.
Hugs from London
JuliaHi there
Just wanted to welcome you to the board and thank you for sharing your dad’s journey with us. My dad, is facing something similar but things can get better when they find the blockage. My dad was also not able to keep food down, and getting thinner by the day. They also drained alot of stuff out of his stomach/intestine which was undigested food, once this was being done he felt alot better. They then found that there was a blockage in his small intestine/duodenum – they could do two things 1. stent the blockage so that food could pass through or bypass the blockage by connecting i think the stomach and bypassing the blockage. They were able to stent the blockage and my dad is doing alot better in that he can now eat again and has put on a few kilograms. He will never be has robust as he was but he is doing a little bit better. Please don’t give up hope – we all know how hard this is -my thoughts are with you.
with love
Michelle
dbp2011…..I would like to follow Katie and welcome you to our site. I am so sorry to hear of the latest developments with your Dad. Fortunately, the physicians were able to relieve your Dad of the consistent vomiting caused by the blockage. The weight loss you are describing is not unusual with this cancer in fact, that and other symptoms such as jaundice, elevated bilirubin levels, high tumor markers all, are a fairly accurate indicator for this disease to be present. I think for tomorrow to be an important day. The doctors will have a clearer picture and they will be able to answer many of your questions. I will be thinking of you and I am sending all my best wishes to your family. Please, stay in touch and share with us any further developments because, the members on this site will stand by you and support you.
Many hugs are coming your way,
MarionHello dbp2011 and welcome to our wonderful site.
I am so, so sorry you have had to find us but you have come to the right place. I am glad that after two months you have introduced yourself.
I was so moved by your very eloquant, description of what your beloved Dad is going through. What a lot you are having to go through at such a young age and also for your sisters and Mum.
I hope your Dad’s surgery goes well tomorrow and the blockage in the bowel is resolved. What we know about cc is that everyone’s experience is different. However, the weight loss and ascites(swollen abdomen) is not unusual.
At the top of the page is a search tab, you could maybe put soem key words in here to bring up past posts.
You are dealing with a lot of emotions right now, sending you strength to get through today and the days ahead.
Katie x
Hi. I’ve been reading this forum for the past two months ever since I found out my dad had cc. He was diagnosed in April but my parents waited to tell me until I was home from school. I am 19. My dad started his first chemo around a week or two after he found out and it lasted for a month but it didnt work. In january is when my dad started to have abdominal pains but the doctors thought it was something else. He continued on feeling fine, going skiing and doing a bunch of other stuff. In March it got a little worse so they eventually did tests and diagnosed him with cc. At the time it was advanced and there was a little in his stomach. I dont know what chemo it is they started but it didnt work. After about a month off of chemo he went to Sloan Kettering where they were going to try two new treatments. All this time my dad was still going to work, just not doing the manual labor of his landscaping business. After a week of the new treatment my dad began not being able to go to the bathroom and he was throwing up about 4 times a day, a lot each time. He went to the hospital the weekend before last and was there for 2 days before he was released. He felt better when he was back home but this past Saturday he had to be taken back to the hospital. This was all due to some colon obstruction/blockage. Due to not being able to eat anything these past 10 days my dad has lost 25 pounds and now is down from 210 when this all began back in April to 145. In the hospital they put this tube in him that sucked out all this stuff and it quickly filled up a quart and a half. He is in the hospital now with this tube and not throwing up. They cannot find the reason for the blockage and are confused.
I visited my dad today in the hospital and he is very thin, his voice is a little weak, and he cant walk around without feeling lightheaded. He decided that he wants surgery to find the blockage eve though the doctors dont like doing this. He wants the aggressive approach because he feels that since they cant find it the blockage through scans this is the way to do it. He spoke of getting out of the hospital, going to some center, and putting the weight back on.
When i got home my mom told me that the doctors told my half sister, who has power of attorney or something, that my dad has only a week to live. The only part of this message that matters is this. The rest was just cause i wanted to write. It wasnt easy to write this either. How can everything turn so quickly? Has anyone heard of a colon blockage that led to this weight loss and his weak condition? How can he only have a week left? When they say one week is there hope for more time than that? My dad is 61 and he doesnt know yet i think that the doctor said this. Tomorrow is his surgery to find the blockage but i dont know what it will do. I have taken this news really bad and I had to write it all here because i just wanted to. I have two sisters, 15 and 21, and they hae taken it hard too.
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