dad diagnosed with cc

Hi Wendy,

I am glad to hear that Dr. Liu can look after your dad. My mom did not have an oncologist and she went directly to Dr. Liu. After her surgery, we were wondering whether she needed chemotherapy and so we consulted other oncologists afterwards. After consulting a few doctors with the majority thinking that she is better off not doing chemotherapy/radiation as adjuvant therapy, we just left it as that. You can look at my previous posts on this issue.
All the best to you and your dad.

Maggie

Hello sunshine and welcome to our site. I am sorry to hear of your friend’s diagnoses. Please, tell her know that we are here for her also.
This cancer strikes in different ways therefore, stay positive and hopeful and make sure to gather as much knowledge as possible as it will help in the decision making process.
All my best wishes,
Marion

Hi Wendy,

I have not heard of Dr. Thomas Yau. HK Sanatorium & Hospital is where my mom did her surgery. It is the best private hospital in HK. Dr. Liu may not be very good at returning emails as I had this experience before. You may have to be proactive in contacting him.

Best regards,
Maggie

Hi Wendy,

My mom was 69 years old and her surgery costed around HK$300,000.

Maggie

Hi Wendy,

My mom had hilar CC and she had 70% of her liver removed along with the gall bladder. Dr. Liu was in the liver group at HKU before he became a private doctor (His email address is: clliu@hkhbpc.com). As I said he is really busy and we had to be proactive in getting an appointment. You could try to email him or call his clinic (the number that I gave you) to see what you can do. PSK from Japan is somewhat tricky to get because first we need to buy it from their Taiwanese distributor for the reason that the Japanese company requires a doctor’s prescription to sell it in Japan. So we got our friend in Taiwan to get it for us. Secondly, it so happened that the factory which makes PSK in Japan was in the same province as the Fukushima nuclear reactor. So the earthquake in March this year affected their production and we are not sure whether future production of PSK will be affected by contamination. Anyway, one could still buy the old stock from the Taiwan distributor (provided that the old stock is still available). If you need info on the Taiwanese distributor, I can provide that, but you need someone to pay them in Taipei and they do not ship to overseas address.

Maggie

Hi PCL1029

The PSK from Japan costs about $500 US per month. It is made by Kureha Pharmaceuticals which owns the patent of PSK. It is being used by cancer patients in Japan and requires a doctor’s prescription.

Maggie

Hi,
I will be off site for about a week;but I will check in again to-nite just in case.
Gavin is sick for the past several days,”very tired” send him an email to chear him up if you can.

BTW,Maggie,is the PSK from Japan expensive? can you tell me how much?
I did copy your email for Wendy.Wendy emailed me she has been traveling between US and Manila and does not have enough time to check on this web sites for info. at this moment.
she is among a few that keep in touch with me via e mail.Thanks for the above info.
God bless.

Hey everyone! thank you for you kind words, I am very stunned (and scared) too. I figure I might be in higher risk and it’s scary being so young (23). Also I have been present for both of those uncles deterioration processes and it has seriously scarred me. This time it is so dofferent because he is doing so well thank God. He has a plastic stent, and he is getting chemo, but recently and randomly decided to stop chemo after this round is over. He has gained 10 pounds and been doing well, I think he’s scared of getting deteriorated, like people with very aggressive chemo side effects get… I’m trying to find a way to get him to be positive about it and looking for info. The cardiologist says his heart is too weak, he already has a few conditions and they say he is not a surgical candidate. He hasn’t looked for a second opinion outside the hospital he is in right now, he is very very stubborn. I’m trying real hard to get more answers but his resisting doesn’t make it easy. He also refused the invitation to a support group.